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Live Reporting

Emma Gordon and Craig Hutchison

All times stated are UK

  1. That's all from Holyrood Live!

    Colitis & Crohn's

    That's all from Holyrood Live on Wednesday 13 March 2019.

    Pauline McNeill said Scotland has the highest onset of paediatric Irritable Bowel Disease (IBD).

    Ms McNeill cited a shortage of specialist clinicians and nurses for children with Crohn's or colitis, as she led a member's debate at the Scottish Parliament.

    The Labour MSP and a number of members highlighted the need for better access to more public toilets.

    Labour MSP Pauline McNeill
    Image caption: Labour MSP Pauline McNeill

    She called for one nurse for every 500 patients with IBD and for age appropriate services, with continuing psychological support.

    "We need an IBD service fit for the 21st century," she said.

    Public Health Minister Joe Fitzpatrick said the government was developing an action plan to help children with IBD, and added access to public toilets would be considered in the Planning Bill.

  2. Join us for the evidence session on the smacking ban bill from 9am.......


    We’ve opted for the Equalities and Human Rights Committee taking evidence on the smacking ban bill with a raft of good witnesses, crucially Police Scotland and the Law Society, as well as a former Irish senator.

  3. Access to private toilets?

    Joe Fitzpatrick

    Tory MSP Miles Briggs asks how businesses can be persuaded to make their toilets available.

    The minister points to the mobile app which is under development, which will signpost the nearest accessible toilet.

  4. Pilot scheme for IBD specialist nurses

    Public Health Minister Joe Fitzpatrick takes the floor, and thanks Crohn's and Colitis UK for helping to develop a blueprint for the future on the condition.

    It's helped lead to improvements in care, he says, and adds that specialist nurses will be introduced in a pilot scheme in the community.

    Joe Fitzpatrick

    Phone and video consultations will be available, and says a mobile app showing where public toilets are is under development.

    Pauline McNeill asks what more health boards can do to implement the blueprint.

    Mr Fitzpatrick says he'll pick up on the issue "later".

    He says they're developing an action plan on helping children with IBD.

    Access to public toilets will be considered in the Planning Bill.

  5. Background: Bowel disease patients in lifestyle study

    Research Lab

    People with debilitating bowel conditions are being invited to take part in a study to better understand what causes the diseases to worsen.

    University of Edinburgh researchers want to shed light on everyday factors that may influence flare-ups of Crohn's disease or ulcerative colitis.

    They also want to investigate how changes in diet and lifestyle might help sufferers.

    The study will collect data from 1,500 patients in Scotland and England.

    Read more

  6. IBD a life-long and painful condition with a need for psychological support - Lib Dem

    Lib Dem MSP Liam McArthur
    Image caption: Lib Dem MSP Liam McArthur

    Lib Dem MSP Liam McArthur refers to young Joseph who spoke to the cross-party group, who if he doesn't become the next Andy Murray may join members as an MSP!

    Mr McArthur cites the increase in prevalence in IBD and stresses the challenges must be addressed.

    Variations in access to services are a concern and the geographic barriers must be broken, says the Lib Dem MSP.

    He agrees this is a life-long and painful condition with a need for psychological support.

  7. Background: Highlands public toilet closure plan approved

    Highland councillors have voted for controversial plans to close public toilets across the region to save almost £500,000-a-year.

    A number of the 29 sites originally proposed for closure are to be kept as council-run facilities.

    These include Achmelvich, Station Brae in Fort William, Lairg, West Beach Nairn, Rhiconich, Scourie, Smoo Cave, Tarbet and Dingwall.

    Highland Council is the UK's largest provider of public conveniences.

    Read more here

    Public Toilets
  8. Greens: Almost half of public toilets have been shut by local authorities

    Alison Johnstone

    Alison Johnstone, for the Scottish Greens, also highlights access to public toilets.

    She says there is growing demand, because of people who have IBD, and yet 45% of public toilets in Scotland have been closed by local authorities in recent times.

    Loneliness can be an issue for those with the condition, she adds.

    "Sanitation is a basic human right," she says.

  9. Labour MSP praises Changing Places and ''Not Every Disability is Visible'

    Labour MSP Monica Lennon
    Image caption: Labour MSP Monica Lennon

    Labour MSP Monica Lennon pays tribute to the cross-party group on IBD, telling the chamber there is a history of bowel disease in her family.

    Ms Lennon also thanks Crohn's and Colitis UK.

    The Labour MSP calls for better access to public toilets as they can make a transformative difference.

    She praises cross-party work with Changing Places and warns against any changes to the forthcoming Planning Bill that inhibit progress in increasing access to public toilets.

    The Scottish government has pledged to roll back changes MSPs made to its reforms of the planning system.

    She praises Crohn's and Colitis UK for their campaign 'Not Every Disability is Visible'.

    Crohn's and Colitis UK
  10. Background: Darren Fletcher - 'I help colitis sufferers'

    Darren Fletcher

    Former Scotland captain Darren Fletcher told BBC Radio 5 live Daily that he was in "constant" personal contact with dozens of sufferers of ulcerative colitis.

    The Stoke midfielder was diagnosed with the condition himself in 2011.

    Hear more

  11. 'Access to toilets needs to be improved' - Tories

    Miles Briggs

    Conservative Miles Briggs says the paediatric workforce in Scotland is on the verge of a recruitment crisis.

    He also says access to toilets needs to be improved, in NHS buildings and outside.

    Access should be treated as a public health concern, he says.

    He also points out that medical professionals should look to using email as a form of communication to patients who find it difficult to leave the house.

  12. 'We need an IBD service fit for the 21st century'

    Labour MSP Pauline McNeill

    The stories of young people overcoming IBD is quite incredible and misdiagnosis remains quite high, Ms McNeill adds.

    The Labour MSP praises a number of young people who have battled with the condition.

    She calls for one nurse for every 500 patients with IBD and for better access to toilets and age appropriate services, with continuing psychological support.

    "We need an IBD service fit for the 21st century."

  13. Scotland has highest onset of paediatric IBD

    Labour's Pauline McNeill says Scotland has the highest onset of paediatric IBD, and that numbers are rising around the world.

    She says the treatment costs are akin to those of diabetes and cancer.

    The MSP says research has pointed to the cause possibly being the western diet and processed foods.

    Pauline McNeill

    Ms McNeill says her neice and god-daughter Angela was diagnosed with ulcerative colitis at the age of 15.

    Days in the children's hospital became part of her niece's life she says and thanks medical professionals for their "angelic" help.

    There is a shortage of specialist clinicians, she adds.

  14. The motion has been lodged by Pauline McNeill

    Crohn's & Colitis