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Summary

  1. The Health Committee take evidence on the NHS ahead of the budget from the chief medical officer and the chief executive of NHS Scotland
  2. MSPs approves regulations that will implement "Frank's Law", allowing under 65s with to receive free personal care
  3. The Scottish government leads a debate celebrating Scotland's volunteers
  4. Labour MSP Daniel Johnson leads a debate highlighting issues around the portrayal of ADHD treatment, a condition he has

Live Reporting

By Craig Hutchison and Louise Wilson

All times stated are UK

  1. That's all from Holyrood Live!

    Frank and Amanda Kopel
    Image caption: Frank Kopel faced bills of £1,200 for care after being diagnosed with early onset dementia

    That's all from Holyrood Live on Tuesday 5 June 2018.

    Plans to extend free personal care to under-65s with degenerative conditions have been backed by the Health Committee.

    The change, known as Frank's Law, is due to come into force from April next year.

    It follows a campaign by Amanda Kopel, the wife of former Dundee United player Frank Kopel, who died in 2014. He was diagnosed with early onset dementia aged 59 and faced bills of £1,200 a month for care.

    Council umbrella group Cosla has raised concerns over an expected surge in demand once personal care charges are removed for under-65s.

    The body had suggested delaying full implementation until 2021 but, appearing before the committee, health and social care spokesman councillor Peter Johnston said the April 2019 date had been accepted.

  2. Minister to host round table discussion on ADHD

    Ms Watt
    Image caption: Ms Watt

    Ms Watt says as a former prison visitor she is well aware of the number of prisoners with ADHD other behavioural issues and quite frankly should not be part of the prison population.

    The minister confirms she is looking to having a round table discussion with Daniel Johnson.

    The debate draws to a close.

  3. Background: Children at risk from ADHD diagnosis delays, experts warn

    Jane Dowson and her daughter Charlotte, who has attention deficit hyperactivity disorder
    Image caption: Jane Dowson and her daughter Charlotte, who has attention deficit hyperactivity disorder

    Slow, complicated delays in diagnosing attention deficit hyperactivity disorder are putting UK children at risk, a report has found.

    According to those surveyed, nearly a third of children waited two or more years to be diagnosed with ADHD.

    Most felt it wasn't recognised as a real condition by the GPs, school staff and specialists they encountered.

    The ADHD Foundation called for urgent change, saying the current system "fails thousands of children".

    Read more here.

  4. Netflix documentary was 'unbalanced and frankly stigmatising' says minister

    Mental Health Minister Maureen Watt
    Image caption: Mental Health Minister Maureen Watt

    Mental Health Minister Maureen Watt joins her colleagues in praising Daniel Johnson for bringing his experience to the chamber.

    She slams the Netflix document, describing it as "unbalanced and frankly stigmatising".

    The minister confirms SIGN guidance will be updated.

    It is important to acknowledge that both medication and other support methods can be used to treat ADHD, Ms Watt highlights.

    People with mental health issues should expect to receive the same standard of care as those physical health issues, the minister adds.

  5. 'We must listen to those with ADHD'

    Tory MSP Alexander Burnett
    Image caption: Tory MSP Alexander Burnett

    Tory MSP Alexander Burnett praises Mr Johnson for his "personal and compelling opening speech".

    Mr Burnett also expresses gratitude to Emma Harper for sharing her story of living with her husband who has ADHD.

    Despite unhelpful programmes like Take Your Pills, medication is a valid option, he says.

    Mr Burnett says additional treatments like psychological support can also help.

    We must listen to those with ADHD and organisations like the Scottish ADHD Coalition on what treatment can make a difference, states the Tory MSP.

  6. Background: 'Not just for naughty boys': The rise in adult ADHD pills

    Video content

    Video caption: ADHD tablets make me feel not broken

    More than 1.6 million prescriptions for ADHD medication were dispensed in the UK last year - double the figure of a decade ago. With adults now the fastest growing patient group, what is it like for those living with the condition?

    "I'd always put it down to just not having any willpower, and not being able to cope in stressful situations," Sam Sykes tells the BBC's Victoria Derbyshire programme.

    "I thought I was a bit of a lesser human, frankly."

    Sam was diagnosed with ADHD last year at the age of 44. Her seven-year-old son also has the condition, which often has a genetic link.

    Sam says she has lived life with "almost constant anxiety", and finds it hard to stay in a job for any length of time.

    "I get to the point where I can't cope anymore," she says.

    "Either I'm too bored, or too frustrated, or I genuinely believe that I'm doing such a terrible job that I need to put my employer out of their misery."

    Read more here.

  7. Treatment must be tailored to individual says SNP MSP

    SNP MSP Stewart Stevenson
    Image caption: SNP MSP Stewart Stevenson

    SNP MSP Stewart Stevenson emphasises the need to treat individuals in the best way for them.

    This may be a mix of medication, mental health support and family support, he suggests.

  8. Background: What is ADHD?

    Video content

    Video caption: Rhys's top tips for living with ADHD

    What is ADHD?

    • It is a neuro-developmental condition, with symptoms including inattention, impulsivity and hyperactivity.
    • ADHD is caused by a mix of factors, including environment and early childhood experiences but it strongly hereditary.
    • Symptoms are apparent in early childhood and for most people continue into adulthood.
    • It rarely exists on its own and is associated with autism, dyslexia, dyspraxia, sensory processing disorders and tic disorder.
    • It can lead to problems including poor academic achievement, unemployment, criminality, and drug and alcohol dependency.

    Source: Scottish ADHD Coalition

  9. Labour MSP praises bravery and courage of his colleague Daniel Johnson

    Labour MSP Anas Sarwar pays warm tribute to colleague Daniel Johnson
    Image caption: Labour MSP Anas Sarwar pays warm tribute to colleague Daniel Johnson

    Labour MSP Anas Sarwar praises the bravery and courage of his colleague Daniel Johnson for speaking out about his ADHD and he hopes it gives confidence to others.

    He says he hopes this debate sends a unified message against the Netflix documentary and instead opens a positive dialogue about what positive treatment we can have going forward.

    Mr Sarwar stresses there is no shame in having ADHD or in taking medication for it.

    The Labour MSP insists an effective CAMHS service is important and calls for improvements in ADHD diagnosis and treatment.

  10. Background: 'More than medication' needed to treat ADHD

    The Scottish ADHD Coalition's report raises concerns that medication is overly relied on
    Image caption: The Scottish ADHD Coalition's report raises concerns that medication is overly relied on

    Families of children with ADHD are warning that too often medication is the only option they are offered to manage the condition.

    A survey of parents across Scotland found evidence of delays in diagnosing ADHD and inadequate support afterwards.

    The Scottish ADHD Coalition also uncovered concerns about inadequate training of school staff.

    The Scottish government said medication was offered in accordance with good clinical practice.

    It was often accompanied by non-drug treatments such as counselling, it added.

  11. Other treatment options must be available alongside medication says Tory MSP

    Tory MSP Miles Briggs
    Image caption: Tory MSP Miles Briggs

    Tory MSP Miles Briggs praises Mr Johnson for speaking about his personal experience of ADHD.

    We need to see media provide a balance and informed portrayal of the condition, he states.

    ADHD is a significant health issue for our society Mr Briggs argues.

    Medication can make a huge difference to the lives of people with ADHD and no one should feel there is anything wrong with taking medication, explains the Tory MSP.

    He adds that medication alone is not the only answer, yet in many cases it is the only thing being made available to families across Scotland.

    The Tory MSP backs calls for teachers to receive more training on ADHD.

  12. SNP MSP explains how ADHD diagnosis was life-changing for husband

    SNP MSP Emma Harper says she watched the Netflix documentary Take Your Pills and felt much the same way as others felt, citing one reviewer who felt it was "myopic and scaremongering".

    Ms Harper tells the chamber she has had many years of first hand experience of living with someone with ADHD, saying "my husband has ADHD".

    SNP MSP Emma Harper
    Image caption: SNP MSP Emma Harper

    The diagnosis was life-changing for him, as Aderall worked for him promoting positive relationships with everyone.

    She urges the Scottish government to encourage Healthcare Improvement Scotland to update SIGN guidelines on the management of ADHD in children and young people.

    She calls for guidelines for adults to be included as well.

  13. 'I take my pills because they have transformed my life'

    Ritalin tablet

    Mr Johnson says ADHD medication is an important first step in learning other techniques to manage the symptoms.

    ADHD is a bit like a record player where the needle keeps jumping out the groove, he suggests.

    Mr Johnson highlights that while 5% of the population have ADHD, 20% of the prison population also have the condition.

    This is a policy failure, he argues.

    We need to de-stigmatise medication and improve access to mental health services, the MSP explains.

    "I take my pills because they have transformed my life, and transformed the live of my family," he concludes.

  14. 'I take ADHD medication but I am not a zombie'

    Mr Johnson

    Mr Johnson explains one in 20 people are like him and have ADHD.

    The Labour MSP says people know more about the myths about ADHD rather than the facts and that is not right.

    He says we are here today to bust the myths around ADHD.

    "I have ADHD and I have been taking Methylphendate, which most people will know as Ritalin, every day for the last five years."

    Mr Johnson says: "I am not a victim, I am not looking for special treatment, my brain is just wired up in a slightly different way."

    ADHD is real, it is not an excuse for bad parenting he explains.

    "I take ADHD medication but I am not a zombie."

  15. Briefing from Scottish ADHD Coalition: What is ADHD?

    ADHD is a neurodevelopmental condition affecting brain structure and neurotransmission: the way in which messages are communicated around the brain and different areas of the brain are activated.ADHD is caused by a complex mix of environmental and genetic factors, but is a strongly hereditary condition. ADHD is usually a lifelong condition and becomes apparent in childhood (before the age of 12).

    The consensus of NICE and the Scottish Intercollegiate Guidelines Network (SIGN) is that approximately 5% of children have ADHD, and approximately 1.5% have severe ADHD (hyperkinetic disorder).  However, treatment rates in Scotland are generally much lower than this, and there is considerable variation between health boards.
    Image caption: The consensus of NICE and the Scottish Intercollegiate Guidelines Network (SIGN) is that approximately 5% of children have ADHD, and approximately 1.5% have severe ADHD (hyperkinetic disorder). However, treatment rates in Scotland are generally much lower than this, and there is considerable variation between health boards.

    ADHD has three core symptoms which affect people with it to different degrees.

    Inattention

    Difficulties with concentration, short term and working memory

    Difficulties with planning and getting started (activation)

    Difficulty with organisation and losing things

    Easily distracted by small things which others wouldn't notice

    Impulsiveness

    Acting or speaking on the spur of the moment without thinking through the consequences.

    Difficulty controlling emotions

    Hyperactivity

    Whilst adults with ADHD are usually much less active than children with ADHD, they may still have symptoms such as restlessness and the need to tap or fidget.Some people are diagnosed with attention deficit disorder (ADD) without hyperactivity:this is particularly often the case for girls and women.

    For a full analysis of treatment rates across Scotland, see https://www.scottishadhdcoalition.org/adhd-in-scotland/

  16. Labour MSP says his ADHD diagnosis has been empowering

    Labour MSP Daniel Johnson
    Image caption: Labour MSP Daniel Johnson

    Labour MSP Daniel Johnson says he has been "touched and overwhelmed" by the response to him confirming he has ADHD in parliament.

    He responds to people calling him brave byt suggesting he is not - and highlights one of the symptoms of ADHD is "very poor impulse control"!

    This can be useful as an MSP he elucidates.

    Mr Johnson expresses anger at the recent Netflix documentary, Take Your Pills.

    My diagnosis of ADHD has been empowering, he tells the chamber.

  17. Labour MSP criticises Netxflix ADHD documentary

    Mr Johnson, who has talked living with ADHD in the parliament before, uses his motion to highlight strong concerns about the documentary,Take Your Pills, which has been distributed by Netflix.

    The Labour MSP has strong concern about what it sees as the programme's unbalanced portrayal of ADHD and its treatment.

    NHS prescriptions for ADHD medications have more than doubled over the last decade
    Image caption: NHS prescriptions for ADHD medications have more than doubled over the last decade

    Mr Johnson cites NICE guidelines on the diagnosis and treatment of the condition and Royal College of Psychiatrists in Scotland’s, ADHD in adults: good practice guidelines;.

    This report the calls for the Scottish government to update the SIGN guidance on ADHD, which, it understands, has remained the same since 2009.

    The Labour MSP calls for more informed understanding of the condition and says taking prescribed medication to treat diagnosed neuro-developmental disorders and mental health conditions is as legitimate as taking prescribed medication to treat physical illness.

  18. Here's the motion to the debate..............

    Here's the motion
  19. ADHD treatment debate

    Diet has been identified as an important factor in the treatment of ADHD
    Image caption: Diet has been identified as an important factor in the treatment of ADHD

    Labour MSP Daniel Johnson will now lead a debate on the portrayal of ADHD treatment.

  20. MSPs unanimously back the motion from the debate celebrating volunteers

    Motion