'I live knowing each day may be my last'
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What is it like living with an unknown genetic condition?

Amy-Claire Davies has an unknown genetic condition which leaves her with potentially fatal agonising spasms.

But the 24-year-old, who was not expected to live past childhood, has chosen to dream of a bright future focussing on her family, friends, boyfriend and hobbies.

Ms Davies said she is one of a "new generation" of people who are still alive in adulthood thanks to medical advances, despite having terminal illnesses.

"My world is full of love. I have hopes and dreams for an incredible future," she said.

Watch the Incurable Optimist on BBC One Wales at 22:40 GMT on Monday, 25 February - and on BBC iPlayer.

  • 22 Feb 2019
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