Campaigning to make a life-changing drug affordable
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PKU and Kuvan - the campaign for an affordable drug

Leanne Barnett's twins, Olivia and Ruby, were born with a rare genetic condition called PKU.

The lifelong condition means they have to follow a strictly regimented diet as their bodies can't properly break down protein.

A drug exists which could help them lead a normal life, but the manufacturer has made it too expensive for the NHS to afford.

Video journalist: Jonathan Holmes

  • 07 May 2019
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