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KIERAN
By Kathy Hemestretch
Kathy's 17 year-old son Keiran suffers from a severe genetic disorder called adrenoleukodystrophy (ALD). The film Lorenzo's Oil portrayed a child with the same condition. She explains what it was like to find out that her child has a terminal illness.

Links

ALD Foundation Government information for carers Carers Week The BBC is not responsible for the content of external sites

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Jan Rettig My son died of ALD in May of last year. He was 37. He died 6 months after being diagnosed. I would very much like to get in touch with her. thanks Nina Thank you for sharing your courageous experience with us. I would like to know if Keiran can speak or if he is able to do anything with his mind?

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