"It has affected my arms and my shoulders and makes the normal things you would do on a day-to-day basis quite difficult.
"What's actually happening is that you are sending signals to your hands or arms and you want them to do things but they just won't do it."
In an attempt to raise awareness of the condition and increase research funding, the former Antrim football captain has set up a new charity called deterMND and upcoming events include a seven-a-side GAA tournament this Saturday at the St Paul's club in Belfast which will see GAA stars such as Joe Brolly in action.
"After being diagnosed, I was speaking to the consultants and asking: 'Why did this happen? What have I done to my life? What has caused this? What do I need to do for a cure? What medication do I need to take?'
"But there's just nothing. That's the big frustration and I just felt that if I could do anything from my own position to try and highlight or enhance the research or give support to people living with the condition, that's what I would endeavour to do."
As for his day-to-day life, Finnegan says he will continue to live each day "as fully as I can".
"I enjoy the moments. Walking the dog which I do on a regular basis. Pottering around the house, listening to the normal running of the house, the noises of the house, just really taking each day as it comes."
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