BBC HomeExplore the BBC

12 July 2009
Accessibility help
Text only

BBC Homepage

Sites near Somerset

Related BBC Sites


Contact Us

Like this page?
Send it to a friend!

 

So Somerset

You are in: Somerset > So Somerset > Autism: 'Like being on a different planet'

Outline of a child

Autism: 'Like being on a different planet'

Around one in every 100 people across the UK have autism or asperger's syndrone. We take a look at what it's like to live with the condition in Somerset.

Services in Somerset

Lynx Centre- a day care place where people with the condition learn skills to get them into work

An after schools club in Street

P2P (Parent to Parent support groups)

Early Bird (a support network for parents who a newly diagnosed child with Autism)

Yeovil Asperger's Social Group

Autism and Asperger Syndrome (AS) are part of a range of disorders that cause communication and emotional problems. To people with these disorders the world can appear chaotic with no clear boundaries, order or meaning.

People with the condition often find it difficult to cope in social situations which can mean everyday activities such as going to work or getting a bus, are incredibly difficult.

They can have difficulties in understanding non-verbal communication such as body language and facial expressions which can account for around 80% of how we communicate with each other.

"It’s a bit like being on a different planet where you can’t speak the language," said Diane Rawlings, area manager for the National Autistic Society (NAS) in Somerset.

"It should never feel like you are making an appointment, I can't stress that enough. It's more like a friendship."

Befriender Matthew Richards

Autism and AS belong to a group of conditions that can vary from very mild, where the person can function as well as anyone else around them, to so severe that they are completely unable to take part in normal society.

People at the higher functioning end of the scale (meaning they have an IQ of above 70) can often fall through the net in terms of services available.

A recent survey conducted by the NAS found that only 15% of adults with autism in England are in full-time paid employment. This is because there is a lack of services available to young people during the transitional period between school, higher education, training and employment. In Somerset, there is only one support group in Yeovil.

Friend for life

Although there are many schemes to help people with or who are affected by Autism in Somerset, there are few which are aimed solely at young people.

Matthew Cummings, 27, from Yatton, agrees with the report. He said he would like more opportunities to mix with young people as did Eva Glen, 28, from Weston-super-Mare who also has AS.

Matthew Cummings

Matthew Cummings attends the Lynx Centre

As a lot of people with the condition live either at home with relatives or in care, one scheme which allows them to meet new people in an environment which they feel safe in is the Befriender one. This is when people without the conditions visit their homes to chat to them about their lives.

The scheme helps to bridge the gap between their home life and the outside wider community.

Befrienders have to have a long term commitment to person they are befriending as people with autism find it difficult to have different people coming in and out of their lives.

"The trick is to match people correctly. [Befrienders] must have respect for the individual as they are the same as you or I. When you get it right it really benefits everyone," said Ms Rawlings.

The scheme has an impact. "It is nice that someone cares for me and wants to help me," said Matthew.

Matthew Richards, from Weston-Super-Mare, has been befriending a 21-year-old man with AS since May.

"It should never feel like you are making an appointment, I can't stress that enough," he said.

Lynx Centre

The Lynx Centre opened in January 2007

"It's more like a friendship. We both lead busy lives and keep in touch by phone or text message. We don't do the cliched things like going to the cinema. We're usually round mine or his or in the pub. We're both into music and have strong opinions about things, so we have plenty to talk about."

He said he became involved with the scheme after he became interested in the condition through one of his friends.

"A friend who I've known for ten years has AS- he was my friend long before I knew he had it.

"I was fascinated by the condition - everyone with it is different. I wanted to know what it was and how I could make a positive difference to the lives of people with the condition."

Autscape

A special event, Autscape, which was organised for and by people with autism or AS, was held in Radstock in North Somerset in August.

Now in its third year, Autscape is a conference whereby the audience is mainly autistic people.

Non-autistic people are welcome, however the majority of the activities are based around autistic peoples' needs.

Workshops include advising attendees on how to communicate effectively and advice on how to beat loneliness.

The location of the conference, Radstock in North Somerset, was chosen as it is a "peaceful rural retreat centre surrounded by extensive and picturesque grounds".

It is being kept as autism-friendly as possible, with spaces for people to go and fluorescent lighting, which can be a source of pain or irritation to people with autism, is being kept to a minimum.

For more information about the services available to people affected by Autism or AS in Somerset, click on the NAS website:

Or call the NAS Autism Helpline on: 0845 070 4004 10am-4pm, Monday to Friday, (local rates apply).

last updated: 23/08/07

Have Your Say

The BBC reserves the right to edit comments submitted.

Anna Lansley
I have Aspergers. I have always felt rejected. I lack understanding of friendship. I get too possessive with individuals and I can't share them. I develop what I think is a friendship, then someone else also wants to be friends with that person and I get resentful because I feel they are stealing a friend away from me. I'm very childish. I have bad tantrums if I don't get my way. I have trouble finding appropriate things to talk about. But I am an expert at camouflaging this difficulty. I don't think people know the stress I am under all the time because I can pass for normal. At home I let the shackles fall off and my parents take the brunt of my 'mild' Autism. I don't wear a t-shirt so the public assume I am a shy girl. I am not. I love drama and attention. I am far from reserved. But life with Autism is tough. Acting shy is a way of avoiding wrong assumptions were I to talk all the time.

You are in: Somerset > So Somerset > Autism: 'Like being on a different planet'



About the BBC | Help | Terms of Use | Privacy & Cookies Policy