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Intersex conditions |
Tuesday 11 December 2001 |
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It's estimated that at least 1 child in every 1,000 is born with a so-called 'intersex condition', such as Congenital Adrenal Hyperplasia, which means they are neither fully male nor female.
A large proportion of these children are born with ambiguous genitalia and doctors have traditionally believed that it's important to perform corrective surgery as early as possible.
Sometimes the child grows up not even having been told about their condition. But is secrecy and early surgery necessarily the best option?
Jenni talks to Melissa Cull, of Climb CAH support group, who was born with an intersex condition and who underwent corrective surgery throughout her childhood. She explains why she wishes doctors had waited until she was old enough to make her own decision.
And Jenni discusses the issues with Sarah Creighton, Consultant Gynaecologist, University College London, and Peter Cuckow, Consultant in Paediatric Urology, Great Ormond Street.
For more details please call the Radio 4 Actionline on 0800 044 044
Well Aware
British Medical Journal: read Sarah Creighton's article
Androgen Insensitivity Syndrome Support Group
Climb CAH UK Support Group
CLIMB
Adrenal Hyperplasia Network
British Medical Journal: read Melissa Cull's response
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