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Tuesday 24 September 2002

Listen to Tuesday 24 September

RETINA WEEK AND AMD

Guests:
Joe Korner of RNIB

Peter White talking to Joe Korner of RNIB about the retina week and the RNIB's survey about how little GPs know about losing sight.

GPs are seeking more information about Age Related Macular Degeneration (AMD), the biggest single cause of sight loss in the UK. Currently there are high levels of ignorance, according to new research from the AMD Alliance UK, published during Retina Week. GPs do not feel confident about their knowledge of AMD and 57% rate their knowledge as worse than that of other common eye conditions.

Whilst 85% of GPs had seen patients with AMD in the last 18 months, only 12% said their knowledge of AMD was good or very good. Over half said that their knowledge of AMD was a little or much worse than for other eye conditions.

AMD

Age-related macular degeneration (AMD) is a degenerative retinal eye disease that causes progressive loss of central vision. One of the early signs of AMD is the distortion of straight lines which affects people's ability to perform everyday activities such as reading, watching television, driving and recognising familiar faces. An estimated 500,000 people in the UK have AMD and for the vast majority there is no treatment available.

Getting the right low vision assessment, rehabilitation and mobility training can make all the difference in helping people to retain their independence. However, only 5 percent of GPs feel they have had sufficient training or updates on AMD in the last 18 months.

MACULAR DISEASE

Sometimes the delicate cells of the macula become damaged and stop working. It is not known why this is, although it tends to happen as people get older. This is called age-related macular degeneration.

Because macular degeneration is an age-related process it usually involves both eyes, although they may not be affected at the same time. With many people the visual cells simply cease to function, like the colours fading in an old photograph - this is known as 'dry' degeneration. Sometimes there is scarring of the macula caused by leaking blood vessels and this is called wet degeneration.

Children and young people can also suffer from an inherited form of macular degeneration called macular dystrophy. Sometimes several members of a family will suffer from this, and if this is the case in your family it is very important that you have your eyes checked regularly.

Macular degeneration is not painful, and never leads to total blindness. It is the most common cause of poor sight in people over 60 but never leads to complete sight loss because it is only the central vision that is affected. Macular degeneration never affects vision at the outer edges of the eye. This means that almost everyone with macular degeneration will have enough side vision to get around and keep their independence.

SYMPTOMS

In the early stages your central vision may be blurred or distorted, with things looking an unusual size or shape. This may happen quickly or develop over several months. You may be very sensitive to light or actually see lights that are not there. This may cause some discomfort occasionally, but otherwise macular degeneration is not painful.

The macula enables you to see fine detail and people with the advanced condition will often notice a blank patch or dark spot in the centre of their sight. This makes activities like reading, writing and recognising small objects or faces very difficult. If you suspect that you may have macular degeneration but there are no acute symptoms you should see your doctor or optometrist (optician) who will refer you to an eye specialist.

CONTACTS

RNIB
105 Judd Street
London
WC1 H9NE
Tel: 0845 766 99 99 (UK callers only - Monday to Friday 9am to 5pm)
Tel. 0207 388 1266 (switchboard/overseas callers)
Fax. 0207 388 2034
Interpreters are available: please call for details
Textphone users call via Typetalk 0800 51 51 52

The RNIB provides information, support and advice for anyone with a serious sight problem. They not only provide braille, Talking Books and computer training, but imaginative and practical solutions to everyday challenges. The RNIB campaigns to change society's attitudes, actions and assumptions, so that people with sight problems can enjoy the same rights, freedoms and responsibilities as fully sighted people. They also fund pioneering research into preventing and treating eye disease and promote eye health by running public health awareness campaigns.

Macular Disease Society
PO Box 16
Denbigh
LL16 5ZA
email: info@maculardisease.org
Helpline: 0800 328 2849

This is a registered charity with national cover. It aims to be the main self-help organisation for people suffering from macular disease (loss of central vision). The Society has a dedicated eye donor scheme and sponsors its own Research Fellow working at London University on the underlying mechanisms that contribute to the condition. It can provide information and leaflets to members, SAE preferred. Information despatched within 1-2 days.

FIGHT FOR SIGHT
Institute of Ophthalmology
Bath Street
London EC1V 9EL
Tel: 020 7608 4000
info@fightforsight.org.uk

Fight for Sight is the UK's leading charity in the battle against blindness, funding first-class research into the prevention and treatment of eye disease and injury.

SPECS

Peter talks to Hay Parkinson the Chief executive of Special EyeConditions (SPECS) which is an umbrella organisation for 60 rare eye conditions.

Guests:
Hay Parkinson, Chief executive of Special Eye Conditions

CONTACTS

SPECS
PO Box 118
Westerham
TN16 3WR
Helpline tel no: 01959570142
Email: info@eyeconditions.org.uk

SPECS is a not-for-profit organisation which provides support to a wide range of organisations dedicated to helping people with eye conditions. They work in partnership with support groups and professionals to raise awareness and develop co-operative working. The website should act as a directory for patients, parents and clinicians who are looking to find both information and support groups for specific conditions.

PRO-HUNTING MARCH

On Sunday an estimated 407 thousand people deserted their villages and country neighbourhood and flocked to London for the countryside march. Impossible to ascertain how many visually impaired people took part but one person who we know was there was our very own Gary O'Donoghue reporting for the World service.

Peter Talks to Gary about pros and cons of living in the country. Peter himself calls himself as a 'townie' and Gary lives mostly in the country and commutes to work in London. The programme also talk to Ian Peat who moved from Midlands to Argyll.

CONTACTS

COUNTRYSIDE ALLIANCE
The Old Town Hall
367 Kennington Road
London SE11 4PT
Tel - 020 7840 9200
Fax - 020 7793 8484
E-mail - info@countryside-alliance.org

The Countryside Alliance promotes the interests of rural people, including all field sports , sensible wildlife management, and wider countryside concerns such as jobs, landscapes and freedoms. It represents these interests in the media, in Parliament, in schools and throughout the UK.

COUNTRYSIDE ALLIANCE MARCH HELPLINE
Tel: 020 7840 9300
Fax: 020 7840 9310
Email: march-info@countryside-alliance.org


LEAGUE AGAINST CRUEL SPORTS LIMITED
Sparling House
83-87 Union Street
London SE1 1SG
Tel. 020 7403 6155
Fax : 020 7403 4532
Email: info@league.uk.com

NFU
164 Shaftesbury Avenue
London WC2H 8HL
Tel: 0207 331 7200
Fax : 0207 331 7313
Email : NFU@nfu.org.uk
The National Farmers' Union is a democratic organisation representing farmers and growers in England and Wales.

MORRIS DANCING

Ken Oliver is interested in setting up Morris Dancing for visually impaired people and would like hear from any vi person interested.

Ken Oliver's contact details:
Email: kennethpoliver@aol.com
Mobile: 07966 289 133

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