Living with lupus
Lupus is an incurable disease that affects the body's immune system.
It's thought to be more common worldwide than leukemia or multiple sclerosis, yet relatively few people know what it is.
October is lupus awareness month so this week we'll talk to people who have it to find out what it's like living with the condition.
And we'll find out what research is being done into it.
Lupus contact sheet
Shrink Wrapped Lupus fact sheet
Thames Valley Lupus Group
Geraldine Jones (Marlow) - 01628 474736
Sally Baker (High Wycombe) - 01494 450317
Lupus UK is the only national registered charity supporting people with Lupus - http://www.lupusuk.org.uk/.
CALL on 01708 731251 between Monday to Friday business hours of 9am to 5pm.
St Thomas’ Lupus Trust – http://www.lupus.org.uk/ - Charity which supports research and raises awareness about Lupus.
NHS web page about Lupus http://www.nhs.uk/Conditions/lupus/Pages/Introduction.aspx
The Hibbs Lupus Trust - Provide support and information to anybody affected by or concerned about lupus. We raise awareness of the symptoms of Lupus to encourage early diagnosis and reduce life threatening complications associated with the condition. We raise funds to provide facilities, equipment and services for NHS hospitals and Foundation Trusts for the benefit of lupus patients. FREEPHONE 0800 633 5118 Monday to Friday from 9am to 5pm https://www.hibbslupustrust.org/
The Lupus site - www.uklupus.co.uk :: A guide for lupus patients and their families
Lupus Patients Understanding and Support -http://www.lupus-support.org.uk/ a non-profit organisation providing free information and free psychological support for individuals-affected-by-systemic lupus erythematosus, lupus variant conditions and the antiphospholipid antibody (Hughes) syndrome.
Hughes Syndrome Foundation - http://www.hughes-syndrome.org/ - 020 7188 8217 Lupus is often the autoimmune condition most closely associated with Hughes syndrome, simply because the first ever group of patients found to have antiphospholipid antibodies (aPL) were lupus patients.
Other useful links
www.painconcern.org.uk :: Registered charity offering information and support for people who live with pain and those who care for and about them
www.anticoagulation.org.uk :: University of Birmingham Anticoagulation site
www.arthritisresearchuk.org :: The charity leading the fight against arthritis
www.arthritiscare.org.uk :: Arthritis Care
Bedford Hospital – switchboard - 01234 355 122 - http://www.bedfordhospital.nhs.uk/#
Luton and Dunstable University Hospital – switchboard - 01582 49 11 66 - http://www.ldh.nhs.uk/
Hemel Hempstead – switchboard - 01442 213141 - : http://www.westhertshospitals.nhs.uk
Lister Hospital – switchboard - 01438 314333 - http://www.enherts-tr.nhs.uk/our-hospitals/lister/
QE2 – switchboard - 01707 328111 - http://www.enherts-tr.nhs.uk/our-hospitals/qeii/
St Albans City Hospital - 01727 866122 - http://www.westhertshospitals.nhs.uk
Watford General Hospital - 01923 244366 - http://www.westhertshospitals.nhs.uk/
Milton Keynes general - 01908 660033 - http://www.mkhospital.nhs.uk/
Stoke Mandeville Hospital - 01296-315000
Amersham Hospital - 01494 434411
Buckingham Community Hospital - 01280 813243
Wycombe General Hospital - 01494 526161
Local signposting organisations
Disability Resource Centre Bedfordshire – 01582 470900
Buckinghamshire Disability Service - 01494 568 864
MK Centre For Integrated Living - 01908 231344 – email@example.com
Herts Action on Disability - 01707 324 581
Listen to Shrink Wrapped with Dr Chetna Kang and Toby Friedner, Sundays from midday on BBC 3CR