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14/01/2013

Life on the West Sussex coast may sound idyllic but what happens when it looks as if your home is about to be washed away by the sea? With dramatic pictures of a dream that residents say has become a nightmare, Jon Cuthill tells the story of Pagham.

Plus the poignant story of a family from Poole in Dorset whose babies are known as butterfly children.

29 minutes

Last on

Mon 14 Jan 2013 19:30
BBC One Oxfordshire, South only

Epidermolysis bullosa parents work to raise its profile

Epidermolysis bullosa parents work to raise its profile

Inside Out meets Chris and Steph Churchill from Poole, who have two sons, Harry and Cody that suffer from a debilitating and life altering rare skin condition called epidermolysis bullosa (EB).

 

The condition causes the skin to become very fragile, and any trauma or friction can result in painful blisters.

 

Younger patients are sometimes called 'butterfly children' because their skin is fragile like a butterfly's wings.

 

Watch a video feature on the BBC website.

Credits

Role Contributor
PresenterJon Cuthill
DirectorJane Goddard
Series ProducerJane French

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