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Geoff Watts in Dominic Ffytche’s lab
Geoff Watts in Dominic Ffytche’s lab, wearing a device that stimulates hallucinations -
Support Organisations
The Macular Society offers practical support and information to anyone affected by macular conditions, including information relating specifically to visual hallucinations and Charles Bonnet Syndrome.
Helpline: 0300 3030 111
http://www.macularsociety.org/
Information about Charles Bonnet Syndrome
http://www.macularsociety.org/research/Charles-Bonnet-syndrome
Royal National Institute of Blind People (RNIB) is a leading charity offering information, support and advice to almost two million people with sight loss, including information relating specifically to visual hallucinations and Charles Bonnet Syndrome.
RNIB helpline: 0303 123 9999
http://www.rnib.org.uk/Pages/Home.aspx
Information about Charles Bonnet Syndrome
http://www.rnib.org.uk/eyehealth/eyeconditions/conditionsac/pages/charles_bonnet.aspx
Mind is a leading mental health charity in England and Wales. It provides advice and support to empower anyone experiencing a mental health problem. The Mind infoline provides information on a range of topics including types of mental distress, where to get help, drug and alternative treatments and advocacy. They are also able to provide details of local help and support.
Mind infoline: 0300 123 3393
Mind: understanding psychotic experiences
http://www.mind.org.uk/mental_health_a-z/8043_understanding_psychotic_experiences.com
SAMH (the Scottish Association for Mental Health) exists to provide help, information and support; to campaign on behalf of people with mental health problems and to raise money to fund their vital work.
SAMH operates an information service from Monday to Friday between the hours of 2pm and 4pm. Information service staff and volunteers can answer general mental health enquiries, advise you on your rights and signpost you to your local services.
SAMH National Information Service: 0800 917 3466, Email: info@samh.org.uk
Rethink Mental Illness is a charity that believes a better life is possible for millions of people affected by mental illness. It runs services and support groups that change people’s lives and challenge attitudes about mental illness.
For practical advice about issues such as treatment and therapy, medication, money and benefits call the Rethink Information and Advice Line on 0300 5000 927 Monday-Friday, 10am-2pm or email advice@rethink.org
For more information visit http://www.rethink.org/
Rethink: Hearing Voices
http://www.rethink.org/about_mental_illness/mental_illnesses_and_disorders/coping_with_hearing.html
SANE provides emotional support and information to anyone affected by mental illness. Their services are completely confidential and whatever your problems or concerns, you will receive non-judgemental emotional support. They can offer information and support for those who may have concerns about hallucinations relating to a mental health conditions such as schizophrenia or bipolar disorder.
There are 3 main ways to reach them:
Helpline: 0845 767 8000 (available 6pm – 11pm every day)
Email: http://www.sane.org.uk/what_we_do/support/email/
Support Forum: http://www.sane.org.uk/what_we_do/support/supportforum/
Website: http://www.sane.org.uk
Alzheimer’s Society is a leading support and research charity for people with dementia, their families and carers. The Society provides information and support to people with any form of dementia and their carers through its publications, National Dementia Helpline, website and more than 2,000 local services throughout England, Wales and Northern Ireland. Their website includes information about different types of hallucinations that are sometimes experienced by people with dementia, and ways of responding to them.
National Dementia Helpline: 0300 222 1122
Alzheimer’s Society: Hallucinations in people with dementia
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=172
Alzheimer Scotland helps people with dementia, their carers and families. Their members include carers, relatives, people with dementia, professionals, groups and organisations.
24 hour freephone Dementia Helpline: 0808 808 3000,
Email: helpline@alzscot.org
http://www.alzscot.org/pages/info/behaviour.htm (a general page on challenging behaviour linked to dementia)
http://www.alzscot.org/downloads/lewybody.pdf (a factsheet on Lewy Body dementia, with specific reference to hallucinations)
The Lewy Body Society is a registered charity whose purpose is to fund research into Dementia with Lewy Bodies (DLB) and to promote awareness of DLB. They also hope to provide a community focus for those who suffer from DLB along with their carers and families. Two-thirds of patients with DLB experience vivid and recurrent visual hallucinations. Their website provides information to help those who need to understand the disease and its impact.
Parkinson's UK is a support and research charity, working to improve life for everyone affected by Parkinson's. The charity has a free, confidential helpline service staffed by trained advisers and specialist nurses who offer advice, information and support. Their website and helpline can both offer information about hallucinations or delusions that may be experienced by some people with Parkinson’s.
Helpline: 0808 800 0303, Email: hello@parkinsons.org.uk
Hallucinations and delusions in Parkinson's information sheet:
http://www.parkinsons.org.uk/default.aspx?page=10538
ENDS
Broadcasts
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BBC Radio 4Wed 17 Oct 2012 21:00 BBC Radio 4
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BBC Radio 4Tue 7 May 2013 11:00 BBC Radio 4
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BBC Radio 4Thu 9 May 2013 21:00 BBC Radio 4
Jonathan Dimbleby presents political debate and discussion from Fowey in Cornwall.
