Information and Support

If you, or someone you know, have been affected by the issues raised in this programme, the following organisations can help:


In-FACT was set up in November 2012. The Trust has been set up for the purpose of giving relief and assistance to all persons whose disabilities were caused by the fact of their mother taking an Anti Convulsant drug during pregnancy to treat her condition.

For further information contact them by email or visit the website.


Visit the In-FACT website

Fetal Anti-Convulsant Trust

The Fetal Anti-Convulsant Trust was set up to help achieve financial and clinical support for victims affected by anti-convulsant medications while in the womb, and aim to provide relief and assistance for those born in the UK damaged as a result. For further information visit the website.

Visit the Fetal Anti-Convulsant Trust website

Epilepsy Action

Epilepsy Action can provide information and advice on all aspects of epilepsy (including misdiagnosis). They offer a wide range of services and information to support anyone affected by epilepsy. For further information contact their freephone, text message or visit the website.

Freephone: 0808 800 5050

Text Message Helpline: 07537 410 044

Visit the Epilepsy Action website

Epilepsy Society

Epilepsy Society is a medical charity offering information and support to everyone affected by epilepsy. Epilepsy Society undertakes research into the treatments and causes of epilepsy, and delivers specialist medical care and support. Their confidential helpline is open Monday to Friday, between 9am and 4pm, Wednesday 9am to 8pm.

Helpline: 01494 601400 

Visit the Epilespy Society website

Epilepsy Scotland

Epilepsy Scotland provides a helpline and information service to anyone affected by epilepsy. Their website has a wide range of information for people who have been diagnosed with epilepsy and their families as well as for employers and teachers. They can provide confidential one-to-one information through their freephone helpline. Alternatively you can contact them via text message, email or visit the website.

Helpline: 0808 800 2200

Text: 07786 209 501 


Visit the Epilepsy Scotland website

Epilepsy Wales

Epilepsy Wales aims to help people with epilepsy in Wales, their families and carers. Contact them by phone or visit the website.

Telephone: 0800 228 9016

Visit the Epilepsy Wales website


Mind is a leading mental health charity in England and Wales. It provides advice and support to empower anyone experiencing a mental health problem. The charity campaigns to improve services, raise awareness and promote understanding. The Mind infoline provides information on a range of topics including types of mental distress, where to get help, drug and alternative treatments and advocacy. They are also able to provide details of local help and support. Contact them by phone or visit the website.

Telephone: 0300 123 3393 (between 9am and 6pm, Monday to Friday)

Visit the Mind website


SANE provides emotional support and information to anyone affected by mental illness. Their services are completely confidential and whatever your problems or concerns, you will receive non-judgemental emotional support. There are 3 main ways to reach them:

Helpline: 0845 767 8000 (available 6pm – 11pm every day)

Email: Visit the email section of the website

Support Forum: Visit the Support Forum section of the website

Visit the SANE website

PANDAS (pre and postnatal depression advice and support)

PANDAS (pre and postnatal depression advice and support)offers advice and support to individuals and their families across the U.K suffering pre and postnatal illnesses via their website, online community, email support, helpline and support groups.

Helpline: 0843 28 98 401 (9am till 8pm 7 days a week)


Visit the PANDAS website