Information and Support
If you, or someone you know, have been affected by the issues raised in this programme, the following organisations can help:
Bliss is a UK charity working to provide the best possible care and support for all babies born too soon, too small and too sick and their families.
If you or someone you know has been affected by having a premature or sick baby and would like information or support, call the freephone helpline or visit Bliss online.
Helpline: 0500 618 140
TinyLife, the premature baby charity for Northern Ireland is dedicated to reducing premature birth, illness, disability and death in babies.
TinyLife offers practical and emotional support to the parents of premature and vulnerable babies through its raft of family support services.
Phone: 028 9081 50 50
The Children’s Heart Federation
The Children’s Heart Federation is dedicated to helping children with congenital or acquired heart disease and their families in Great Britain and Northern Ireland.
It provides information and advice, small grants, medical equipment, books and dolls and organise family trips. Call the information line on 0808 808 5000 or visit the the Children's Heat Foundation site.
Information line: 0808 808 5000
Sands is an organisation which supports anyone affected by the death of a baby that has died before, during, or shortly after birth.
It also promotes research to reduce the loss of babies' lives.
It offers a telephone support service and online message boards.
Helpline: 020 7436 5881
Child Death Helpline
The Child Death Helpline is a national charity that offers support to anyone affected by the death of a child of any age, from prebirth to adult, under any circumstances, whether recently or long ago.
The helpline is staffed by bereaved parent volunteers supported by a professional team.
Helpline: 0800 282 986
Freephone for mobiles: 0808 800 6019
(every evening 7pm to 10pm; weekdays 10am to 1pm; Tuesday and Wednesday 1pm to 4pm)
Child Bereavement UK
Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement.
Support and Information line: 01494 568900
Tommy's funds medical research into the causes of premature birth, stillbirth and miscarriage, and provides a free information service that educates all parents-to-be about health in pregnancy.
Tommy's midwives can provide free and confidential lifestyle advice for women most at risk of pregnancy health problems due to smoking, stress, poor diet and obesity, as well as bereavement counselling support for anyone who has experienced a pregnancy loss.
Tommy's freephone PregnancyLine: 0800 0147 800 (to speak to a midwife, weekdays 9am-5pm)
Together for Short Lives
Together for Short Lives is a leading charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them.
The Together for Families helpline provides information for families, carers and professionals and is open for anyone who looks after or knows a child or a young person with a life-limiting condition.
On the website you’ll find information, resources and details of local support.
Helpline: 0808 8088 100 (7am-midnight 7 days a week)
Rainbow Trust Children's Charity
Rainbow Trust Children's Charity provides emotional and practical support to families in England who have a child with a life threatening or terminal illness.
Family members, both children and their parents/carers, are supported by Rainbow Trust's support workers wherever they are, whether that is at home, at hospital or in the community.
Rainbow Trust’s support teams are contactable 24 hours a day for families in crisis.
Rainbow Trust provides support from diagnosis, through treatment and, when appropriate, in preparation for and following bereavement.
The website includes contact details for the regional family support teams in England.
Phone: 01372 363 438