Home > Opinion > Tourette ticking: rhyming, singing and clucking
Jennie Routley
Jennie is 28 years old and lives in the beautiful Yorkshire Dales, in a tiny village shared by another 49 people and about 2000 sheep. She was diagnosed with Tourette syndrome later in life, at the age of 26, after fighting with her urges to tic and make bizarre sounds for as long as she can remember. She works from home as a freelance designer, and believes that having TS adds to her creativity.
Tourette ticking: rhyming, singing and clucking
18th March 2009
Yet the media are also missing a trick or two, because there are so many other ways in which Tourette's may choose to express itself in a person.
Often, TS feels like an overwhelming desire: a need to say or do something that is highly inappropriate to the situation you find yourself in. That's what can make it such a cruel condition, and one that appears so unbelievable. I tend to liken my Tourette's tics to wanting to cough in a location where you desperately want to remain silent. You can squirm your way through and if you're lucky you can get past the tickle in your throat, but you also know that you're going to have a good coughing fit when you get out of there.
My TS tends to be expressed through the sounds I hear all around me, which I then echo back with amazing accuracy. I copy whistles and alert sounds from my computer, and the great sounds of a dial-up modem can sometimes come out of me too - although since the broadband takeover this is not as regular as it once was.
Jennie's chickens, who are also the source of one of her tics
I have singing echolalia too, much to the amusement of my friends and family. Echolalia is the technical term for when a person repeats or 'echoes' back words or phrases that someone else has just said. The difference in my case is that this is done in the form of song. I will sing back conversations to people, but have no idea what will come out until the tune is done. These songs are often performed in a kind of musical theatre-style libretto to accompany an activity, complete with over-articulated consonants and earnest tones.
People have asked if I know what I am going to sing before it comes out, and the truth is that it's as much of a surprise to me as it is to everyone else. However, the word 'badger' does seem to regularly feature, presumably because of my nickname – Badger. There's often a lyrical theme of these animals heading or going to the west, although I have no idea why. It's possible that the Pet Shop Boys are an influence, as they were my favourite band as a kid, and they have sung a lot about 'going west' and 'West End Girls'. But I truly have no idea why I sing such things and, most especially, why I sing them at all.
If I'm not making up random song lines about badgers heading west or wearing crowns - “Come to the western side of town, where there’s a badger in a crown!” - then I'll sing popular songs that have been stored away in my head somewhere, but simply replace key lyrics with the words 'badger' or 'schmaow' or whatever my latest ticking word happens to be. I'm In The Mood for Schmaowing, for example, is much more fun than The Nolan Sisters' original, I'm In The Mood For Dancing, although as yet there's no clue about exactly what it means to schmaow.
Jennie out in the wilds of the Yorkshire Dales, where she lives
Most recently my talent for spontaneous rhyming couplets has reached new heights. They were always tuneful and perfectly scanning, but when this particular tic brought about the answer to a question on University Challenge my family were really impressed. Quizmaster Jeremy Paxman had asked the teams to complete the final line of a John Betjeman poem:
"Red hair she had and golden skin,"Pontefract!" I ticked.
Her sulky lips were shaped for sin,
Her sturdy legs were flannel-slack'd,
The strongest legs in …"
And much to my amazement, I was right. Now I was never into poetry - Betjeman's charitable request for friendly bombs to fall on Slough passed me by – so you can imagine how astounding this was, especially as I've not been to Pontefract and didn't even know where the town was before it was spontaneously ticked out.
So you see, I like to think that my form of Tourette syndrome is unique; if not unique then certainly quite different to what the media portrays as being the norm.
When TS allows me to tic the answers to questions on popular television quiz shows, then it's not something bad or a flaw with my brain. I have in fact been gifted.
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