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do we have a right to be free from pain like americans

  • Message 1. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink

    America has in its constitution the right to be free from unnecessary pain and suffering.


    I am wondering if we have this too in england.


    For example, if you are in a lot of pain and need help beyond the capabilities of paracetimol and OTC meds, do you have the right for this?

    Obviously it needs a doctor to prescribe it, so if you are in pain, the medications already taken that are freely available OTC / via 'minor ailments' are not working or providing any relief, is the doctor supposed to do something.


    I realise many people have the luxury of a pain clinic, where, with a bit of luck, a half sympathetic person works who tries to help find a way to reduce the pain to a manageable level.


    I see people out and about, a some of which I know and have said they have a painful condition. Somehow this person isn't a) home bound, or b) screaming in pain

    somehow someone has given something to ease this pain


    I am very frightened now it is getting cold again that I am gonna get a really bad back again, and nobody is gonna do anything for me. I am petrified.


    you know how demeaning it is when you have only 1 friend, who can't see you all the time, in pain, and nobody will come out and your told to "ring an ambulance if its that bad" or nothing.

    you ring, get looked at funny, get wheeled in the ohspital

    first thing they ask "how long has this been going on"

    you say "xx days"

    first thing is "why haaven't you been to see the doctor?"


    I do not want a repeat. If I get bad pains this year, I am recording everything, so if they put "he never said it hurt bad" or if they put "he is unreasonable" or if they put whatever else, I have recorded evidence, that i tried my most reasonable and best to get help in person, then when going out in person was not possible, i tried again over the phone, and when refused, i had to goto hostpial


    I am not wanting to complain at all, but i am terrifed that i will be in lots of pain again, and will not be able to do a thing about it..


    Can i say i have a right not to be in pain, or are we allowed to be left in pain if the doctor doesn't feel like helping?

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  • Message 2. Posted by hossylass (U3749845) on Sunday, 8th November 2009 permalink

    Rob of course we do not have the right to be pain free !

    We are British and will bear our pain with a stiff upper lip and a large dose of stoicism smiley - winkeye

    Its what made Britain Great, dontcher know.

    After all, Nelson was up and about within half an hour of having his arm amputated, allegedly.
    With nothing more than a rusty saw, a bucket of hot tar and an able seaman to bite on.

    My, they dont make them like that any more smiley - biggrin

    Seriousy though, I have no idea what our "rights" are concerning pain relief, in my OCT it seems that they cant afford much more than paracetamol, and no you cant have it with codeine, thats too expensive.

    I think keeping your diary is an excellent idea, even if its only a 1-10 score each day.

    Can you not push for a pain clinic?

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  • Message 3. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink

    I have asked for pain clinic again, and last time i saw doctor about a month ago i put it in writing to

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  • Message 4. Posted by WheeledTraveler (U3343445) on Sunday, 8th November 2009 permalink

    There's a line in the US Constitution about right to be free from unnecessary pain and suffering? (I really should know this, but my brain isn't functioning today) Certainly in the application you're suggesting, few doctors follow it! Very few of my friends here have adequate pain control (and I certainly don't). And believe it or not, you can get stronger pain control OTC in the UK than you can in the US, mainly due to the high level of US paranoia about addiction.

    I am now wondering about some of the interesting practical applications of this. Probably nothing more than getting called a smart-a** for your efforts though smiley - erm

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  • Message 5. Posted by Wheelthing (U12214367) on Sunday, 8th November 2009 permalink

    America has in its constitution the right to be free from unnecessary pain and suffering.


    Insofar as America is concerned you only have the right to be free of unnecessary pain and suffering if you can afford the medical treatment. Although, the UK doesn’t have such a clause written anywhere, the NHS nonetheless gives us far greater freedom from unnecessary pain and suffering in delivering much treatment free at the point of need.

    I see people out and about, a some of which I know and have said they have a painful condition. Somehow this person isn't a) home bound, or b) screaming in pain


    I’m not home-bound; nor do I tend to scream in pain while out and about. Yet, I have a chronic pain condition.

    However, in the confines of my own home I do often scream, shout and rant against the iniquitous relentlessness of the pain I endure.

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  • Message 6. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink


    However, in the confines of my own home I do often scream, shout and rant against the iniquitous relentlessness of the pain I endure.



    this is what i dont understand. why isn't this controlled? do you not have enough pain medication, or are they too weak? do you have a stiff upper lip and dont take pain meds unless you scream for 1 hour or more?

    why is this allowed? if you wont take ur pills thats one thing, but if they wont give you decent pills thats another.


    its stupid because we need someone to sign a piece of paper to not be in pain, and they get paid stupid money if they sign it or not.

    i hate haaaaaaaaaaaaaaaaaaaaaaaaaate doctors

    show me 1 who gives a damn about anyone other than himself and his close circle and then i believe not all are self servin businessmen who dont care.

    I met 1 in all my time and he has retired.


    all thats happened is i have been let down, ignored, been ill treated, abused, bullied, rejected, maligned by doctors

    and they all got paid just as much (prolly more coz i am complex needs) regardless

    so i have no quarms, i hate, unless they show me they care.

    caring is doing the best possible, and offering solutions and advice, not just writing a script for the most expensive, yet uselessist tablet there is, so they can get a free bouncy ball

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  • Message 7. Posted by NuttySurvivor (U2017168) on Sunday, 8th November 2009 permalink

    The only thing you can do to stop severe pain is to dope someone up to the extent that they can't function properly. There's no magic bullet: it's all a compromise.

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  • Message 8. Posted by Wheelthing (U12214367) on Sunday, 8th November 2009 permalink

    this is what i dont understand. why isn't this controlled? do you not have enough pain medication, or are they too weak? do you have a stiff upper lip and dont take pain meds unless you scream for 1 hour or more?

    why is this allowed? if you wont take ur pills thats one thing, but if they wont give you decent pills thats another.


    its stupid because we need someone to sign a piece of paper to not be in pain, and they get paid stupid money if they sign it or not.

    i hate haaaaaaaaaaaaaaaaaaaaaaaaaate doctors

    show me 1 who gives a damn about anyone other than himself and his close circle and then i believe not all are self servin businessmen who dont care.

    I met 1 in all my time and he has retired.


    all thats happened is i have been let down, ignored, been ill treated, abused, bullied, rejected, maligned by doctors

    and they all got paid just as much (prolly more coz i am complex needs) regardless

    so i have no quarms, i hate, unless they show me they care.

    caring is doing the best possible, and offering solutions and advice, not just writing a script for the most expensive, yet uselessist tablet there is, so they can get a free bouncy ball


    Rob, doctors don’t cause my pain; no, that’s caused through a number of reasons, mainly trapped nerves in my lower spine, hips and neck. Doctors are not God; they can’t guarantee to cure all ills or even to necessarily keep all pain at bay.

    I take a number of meds to try and control the excesses of my chronic pain disorder. However, I also choose not to take pills every day or entire dosages I’m prescribed. This I do out of choice; for, if I’d taken every pill prescribed to me over the past twenty-some years my body would probably have given up on me a long time ago.

    Most of the time I don’t take meds, as most of the meds, while taking the edge of the pain and stopping me from spasms, make me feel like crap. Weighing up the pain versus the feeling like crap whilst doing all sorts of untold damage (when taken long term) on my other organs, I opt for the pain.

    Yet, I suppose I’m fortunate in that I have the meds as a fallback position.

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  • Message 9. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink

    yes i agree, but the person themselves should have the choice, not a doctor who its irrelevant to.


    I think the oncall opt out was a big mistake and a disgrace

    I think if the own surgery still had to provide this, if you called up oncall more than a couple of times in severe pain, it would be in their interests to give a stronger rx


    i think people who say they are in a lot of pain, but dont take anything, perhaps have a very good tolerance, or are exagurating their pain, because in my experience, people in a lot of pain need something.

    mentally this is shown by people seeking drugs from the street because the watered down medical stuff is very weak in comparison.

    "ooooo its soo dangerous, you dont know whats in them"

    yes, ok, only trust a doctor, they only killed several thousand last year of blunders, while the street drugs took a fraction of that.

    useless people

    the power to ease suffering and choose not to, and sleep easy with their telephone salary.

    they have the highest suicide rate of a professional job, because they are all so stuck up that when they need help mentally, they know how awful they will get treated, and thus dont seek it. dont try telling me its a magical force that kills them.

    and as for the highest rate of substance abuse, this is stupid. If u gave the keys of the drugs cabinet to the cleaners, u find find them too would quickly have the highest rate of substance abuse.

    not the mention they got the cash for cocaine etc

    i know of a situation of doctor suicide, and the ironic thing was, when my friend went to seek help from this doctor years before, the doctor told him the best thing for him was to throw himself under a bus.


    just coz u can spend hours in a libary learning positions of bones and remembering names of all the muscles, dont mean u r a good caring person, especially if you follow the money

    all this "but they will leave if they get less money"

    i say good ridance, lets keep the ones who give a damn, and rid the money business out of the system

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  • Message 10. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink


    Rob, doctors don’t cause my pain; no, that’s caused through a number of reasons, mainly trapped nerves in my lower spine, hips and neck. Doctors are not God; they can’t guarantee to cure all ills or even to necessarily keep all pain at bay.



    no quite right i agree, i am all wrong but not any of what i said is to do with curing, or doctors being the initiaal cause of the pain


    they are the only people to legally get u the relief.

    others who use street diamorphine run criminal record risk, others who use canabis need to hope their doctors note if they are lucky bears some weight in court


    the way i see it, if I see 100 people suffering, and I am able to sort their suffering, even if not cure it, just anethatise the suffering, and i choose not to, yet i am paid to do this, then i am a evil nasty piece of work that deserves to die in the very worst way imaginable

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  • Message 11. Posted by NuttySurvivor (U2017168) on Sunday, 8th November 2009 permalink

    I think that your comments about doctors who commit suicide are in very bad taste. They are human beings like the rest of us and can hurt like the rest of us.

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  • Message 12. Posted by Wheelthing (U12214367) on Sunday, 8th November 2009 permalink

    i think people who say they are in a lot of pain, but dont take anything, perhaps have a very good tolerance, or are exagurating their pain, because in my experience, people in a lot of pain need something.


    Depends on how you measure ‘a lot of pain’. My measure probably differs from yours. For instance, I’d rank being unable to sleep through pain as ‘a lot of pain’. Again, how do you measure tolerance to pain?

    My tolerance levels, in my view, aren’t particularly high; but then, when I’m not on pain killers I’m usually leading a fairly sedentary life at home. As for exaggerating my pain; you’re probably right; no doubt from time to time I do exaggerate the levels, but then I put this down to the variability of my condition and the fact that I’m human.

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  • Message 13. Posted by myrtlemaid (U7171398) on Sunday, 8th November 2009 permalink

    I have chronic pain.. the thing is even on the worst days if I dont go out and get food in I dont eat.

    I have been oput when i knew if someone even looked at me the " wrong " way Id either snap their head off , ( verbally not physically), or burst into tears.

    If you live alone and have no friends near by sometimes you just have to

    I do tend to adjust my doses according to need so sometime do take an extra one when things are bad and take less when they are ok.

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  • Message 14. Posted by NuttySurvivor (U2017168) on Sunday, 8th November 2009 permalink

    A close relative of mine is in a lot of pain. He's forever complaining about how his doctor won't prescribe anything strong enough, how the pain clinic is useless, how is PCT won't pay for anything that will actually work.

    But if you look at the list of meds he's taken, it's a mile long, including morphine.

    So where does the problem lie? It lies in the fact that he simply won't accept that not all pain can be killed with pills unless you're prepared to be doped up to the point of not functioning. It's fine to do that to people in hospices who are being nursed, but not much good for people trying to live their lives.

    Some years ago, I looked around me in hospital and saw young people like myself in pain and old people also in pain, but with stomach ulcers as well. I decided I'd rather just have the pain.

    You can say "well, the pain can't be that bad, then" but that's just a subjective judgement based on the notion that if you are in enough pain you'll have analgesics come what may. But some of us prefer to compromise, knowing that there's no such thing as the perfect painkiller.

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  • Message 15. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink



    I think that your comments about doctors who commit suicide are in very bad taste. They are human beings like the rest of us and can hurt like the rest of us.



    please point which comment, link it for me. and state the reasons, i must learn this

    afaik, i only mentioned that they do, its a fact, as for bad taste, and an incident involving a friend who was treated awfully when he went to the doctor in dispear

    rottng corpses urgghhghghgh maybe they do taste bad

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  • Message 16. Posted by NuttySurvivor (U2017168) on Sunday, 8th November 2009 permalink

    they have the highest suicide rate of a professional job, because they are all so stuck up that when they need help mentally, they know how awful they will get treated, and thus dont seek it. dont try telling me its a magical force that kills them.


    You may think that they are "all so stuck up" but that has absolutely no bearing on the suicide rates amongst doctors and I find the suggestion that it does offensive.

    As I said, doctors are just ordinary people. Yes, some are stuck up, but that doesn't mean that they all are, and it certainly has no bearing on why they would want to kill themselves.

    The three professions with the highest suicide rates are doctors, vets and farmers. The link between them is that all have ready access to lethal substances. That is the only thing that distinguishes their success rate from that of other people.

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  • Message 17. Posted by Rob (U6912717) on Sunday, 8th November 2009 permalink


    But some of us prefer to compromise, knowing that there's no such thing as the perfect painkiller.



    i agree, but some of us have never been on owt stronger than df118s

    when my back hurts bad i can't even get out of bed unaided, never mind walk.

    I am dreading it, I feel totally worthless. I asked last year for some crutches (its my back that hurts)

    guess what....

    nope, can't have those, they are only for 'serious problems'

    i aint saying we all shud be totally pain free and doped up like zombies, i am saying some of us can't get what is needed because we have less worth than others

    i am at the bottom of all piles, next to single mums and drug addicts

    its the worst place, u get no help from most people, especially from those who should be helping us the most.

    people not on this bottom rung find it so hard to see the difficulties we face. I can tell from the posts above who is and isn't on this rung of treatment ladder.

    I will always remember how my mum who also has back trouble, rang the oncall doctor, i went round to be with her. the doctor came out twice in 1 day, rang up the evening to check with her, and then came the next day too.

    compare this with being threatend with court.

    difference

    several hundred grand and a university job

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  • Message 18. Posted by dis1dat1 (U12738316) on Sunday, 8th November 2009 permalink

    Rob if you want some crutches pick a site that allows PMs and I will send you some, Ive got some very nice ones that I cant use anymore.

    I am in pain ATM, I am on the strongest types of pain relief for people who arnt at deaths door and it still hurts.

    Our brains can only take so much pain, they ignore the lower pains and consentrate on the major pain but that dosnt mean that that pain dosnt count, it just means its how our brains survive and my spinal damage isnt bothering me now its my right arm and shoulder but that dosnt mean that my spinal damage isnt there but that my arm and shoulder just hurt more NOW.

    More pain killers isnt always the answer and unless you have a dxed problem I can see why DFs are all you can get and maybe getting a dx might help you more in the long runsmiley - hug

    dd

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  • Message 19. Posted by FallenKatieUK (U13898403) on Monday, 9th November 2009 permalink

    Hi,

    I think some of your comments regarding doctors are awful. [messages 9+10]
    Yes you are not happy with the experiences you have had with the doctors you have met, but don't tar them all with the same brush. Many of us have met decent doctors who do care!!

    the way i see it, if I see 100 people suffering, and I am able to sort their suffering, even if not cure it, just anethatise the suffering, and i choose not to, yet i am paid to do this, then i am a evil nasty piece of work that deserves to die in the very worst way imaginable


    and the comments about doctors committing suicide.... doctors are people, they have families and problems JUST like any other human being, and they can hurt like other human beings too.

    Also saying that just because someone isn't housebound, or screaming means they cannot be in severe pain....
    ... many people don't have a choice and still have to go out regardless of how much pain they are in.

    Everyone deals with pain in their own way, some people can work through it others rage and scream, and many people alternate between the two as pain is rarely static and there are as many ways to cope with pain as there are people.

    I also agree completely with NuttySurvivor,
    there is no perfect painkiller!!!

    Just because you have not been on anything stronger than dihydrocodeine does not mean that anything stronger would help you more. And once the painkillers keep getting stronger you are likely to build up a tolerance anyway and need more and more.
    Doctors are reluctant to proscribe very strong painkillers becuase they are not always the solution, its not about your worth! they have to weigh up all of the factors involved and make a responsible decsion. Perhaps instead of a stronger painkiller, one that works in a different way would be more effective for you.

    There are other ways to get crutches [i.e. red cross or purchasing, second hand or from someone who no longer needs them]

    If you do go to a pain clinic there is no guarantee you will be given more painkillers, instead they will teach you coping strategies rather than throwing pills at the problem.

    I know you're in pain/ scared of being in more pain... but remember many of us have been there and do understand what you're going through.

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  • Message 20. Posted by Prabhakari (U2255747) on Monday, 9th November 2009 permalink

    Dear Rob, I am disabled and in pain and discomfort. It is something that I live with, as best I can.

    Painkillers have unpleasant side effects, sadly.

    Have you ever tried getting a T.E.N.S. device for your back? I got my first one from the pain clinic. It helps, but the pads can irritate our skin. However, when I really have need of it, I use it. It has two pairs of pads that I put on my back, as best as I am able to. I use it for an hour or so, and it provides pain relief for a while.

    It is possible to purchase one from a chemist shop. They are not expensive; just spare pads used to be. I bought one for ten pounds.

    My heart goes out to you. I do hope that you find a solution, and can be happy.

    With metta, Prabhakari.

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