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I think I have my diagnosis at last.
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I went to my g.p. today (after 6 months - his suggestion as my health was unlikely to change dramaticaly within this time???). He agreed that I have an almost an absolute diagnosis of Fibromyalgia - at last an answer! I have waited for over 30 years for a diagnosis - in the end I had to gather & present all the info to my new (helpful) g.p. myself [who's the g.p. here?]. Now I have to sort my life out, I'm hoping to talk to a few people in the same situation & work out my plan of action, not sure Im making much sense!!!!!! Tired !, I need to sleep......
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Gladyou have a diagnosis at last.. it really helped me when i got a long awaited one, ( not for FM tho ).Didnt make a materiel difference cos mine really is just about symptom control but mentally it did help to have a " name " to call what was wrong with me.
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I went for an ESA medical and put for medical condition was Dyspraxia which word was brought to my attention through a Attendance procedure for Royal Mail an ATOS doctor recommend them to treat me as part of DDA procedure 5 years ago.
When my report came through the ESA atos Doctor put celerba Palsy after show interest in my birth and symptoms. A great thank you for her after reading up on this a lot of past symptoms and secondary symptoms which were never link to by my NHS gp and clinics visit or at least never was talked over with me.
This diagonis came at the age of 52 with a birth deffect. Final point is at least I can know what to expect in older age with the main worry is joints aging quickly on top of my dyspraxia, balance and speech problems. Back and right hip is start to let the made know.This is a reply to this message.
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Welcome to the fibro club! I'm new to it too in terms of an actual diagnosis though I'd been having problems for a while. It does help to have a name but the action plan is harder.
As far as I can gather pacing oneself is the key to maintaining any quality of life and not expecting too much of oneself. I am unfortunately very bad at this but there are several fibro folk on Ouch who may be able to help you.
Good luckThis is a reply to this message.
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Thank you for replying to my post. They think that I had problems with this from the age of about 8 years old when my back accident may have triggered of the start of the Fibromyalgia - 30 years ago..! I have brilliant book by Claudia Craig Marek which I originally borrowed from the Library but now I have my own copy. Its called 'Fibromyalgia - The first year, A patient-expert guide for the newly diagnosed' it cost me £9.99 and its a great help. If anyone has any tips or ideas to help - especially with the fatigue and the tremors, I would be very grateful. xx
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