Home > The Ouch! Blog

The Ouch! Blog

Welcome to our blog, where the Ouch team writes frequent entries about all things disability - from news snippets, gossip and trivia through to interesting links from all over the web. There's also the occasional guest blogger too. Bookmark us or subscribe to our feed, and be sure to add your comments after each post. Got something noteworthy for the blog? Drop us a line!

Latest Post

Emma

Tweeting disability: bumper stickers and disabled friends

Emma | 1 Aug 2011, 03:35PM

A glimpse into the lives of disabled people from all over the world, via Twitter. With added fascinating biogs.

Just seen AWFUL bumper sticker: 'Men are like parking spaces: the good one's [sic] are taken & the rest are handicapped or too small.'
Lisa Lynch, @LisaLynch London. Blogger and breast cancer surviver

Figured it out now. If I want to be treated like I'm lazy use the mobility scooter. To be treated like I'm stupid use the powerchair.
Peter's Mum, @petersmum. Mum with fibromyalgia

One of my Uni friends said recently that I have too many disabled friends... Um no, but I'm thinking that one less Uni friend will be fine.
Sarah Ward, @Gentle Chaos. Occupational therapist and musician.

A coworker with an ear infection just came up to me and said that now she understands what it's like to be deaf. Uhh, I have no words!
The Pawpower Pack, @pawpower. Deafblind, Herbalist, Canine Massage Therapist from New Orleans

Comment on this post

Recent Posts

Emma

News update: CFS, muscular dystrophy, self harm

Emma | 29 Jul 2011, 05:11PM

The BBC's Tom Feilden reports this morning that scientists working on alternative treatments for Chronic Fatigue Syndrome, also known as ME, have received death threats and been subjected to a campaign of intimidation.

Scientists have said that the campaigners object to any assertion that CFS could be connected with mental illness and are critical of the money or research time given to this area.

CFS was classified by the World Health Organisation as a Neurological illness, rather than a psychological condition, in 1969. A link between CFS and a retrovirus called XMRV was reported in the Science paper in 2009, but retrovirologists have since been unable to replicate these results.

Many people living with CFS, and those who treat them, are in no doubt that it is a neurological condition and would prefer government money were spent on biomedical research.

Some messages sent to scientists involved in exploring alternative CFS therapies were read out on the Today Programme this morning. (the report contains some strong language)

"To those of you who are responsible for preventing us sick, ME sufferers getting the help we need, wasting five million pounds on flawed bulls**t, you will pay."

Scientists have shared the emails due to fears that the campaign is causing researchers to discontinue their studies relating to chronic fatigue syndrome.

Action Now, a patient-driven initiative which aims to make neuroimmune disease advocacy more accessible to sufferers and their loved ones, wrote a campaigning letter to Andrew Lansley earlier this year. In it, they stressed the need for money to be ring fenced for a biomedical approach.

"There is an acute need for research into this disease, largely due to the remarkable lack of funding to date. No significant disbursement has ever gone into funding biomedical research into ME and yet this debilitating disease afflicts an estimated 250,000 people in the UK."

Dr. Chris Shepherd, medical advisor to the ME Association, who has experienced the illness himself, told Today's Sarah Montague that the only biomedical research carried out around CFS has been funded by charities.

Elsewhere in the news

Doctors begin major stem cell trial for MS patients
Australia probes self-harm by asylum seekers
Castlebeck care 'concerns' raised by regulator
Duchenne muscular dystrophy drug "exciting"
Jersey to get anti-discrimination law
Guardian Comment Network: David Cameron is stuck in a timewarp on disability benefits. by Declan Gaffney
Ofcom demands better service for disabled customers
Fit-to-work tests a 'flawed process', MPs say
Welfare to Work policy 'casts the disabled as cheats'

Comment on this post

Damon Rose

Ouch! Talk Show 74: Laurence Clark is a health hazard

Damon Rose | 29 Jul 2011, 12:47PM

"We used head pointer gadgets before you ever did", Laurence Clark's Edinburgh Fringe show and The Kids of Widney High are our unsigned musicians. Mat Fraser and Liz Carr present.

Listen or subscribe to the show by following this link

Read a transcript.

Mat Fraser and Liz Carr

• Liz unearths a picture of a new smart phone product which, for all the world, looks like a head wand pointer that disabled people used to use a lot. Prompting a discussion about how the mainstream market is waking up to the benefits that disability inspired gizmos can bring.

Laurence Clark

Laurence Clark's Edinburgh Fringe show 'Health Hazard' looks at how disabled people fare in the competition-driven health service in the USA and imagines a less disability friendly NHS should reforms take place here. Lots of comedy there, then? A great interview.

• The cast of Glee join us. Oh no, sorry, I mean The Kids of Widney High, all the way from Sunset Boulevard in LA. We talk to them and hear their track 'Life without the cow'.

Coming soon

An hour long summer special will hit your ears and hit your mp3 players in early August. Golf, swimming and not offending people with a speech impairment appear to be on the agenda (Rob's idea). Presented by Liz Carr and Rob Crossan.

Comment on this post

View all posts

Disability Bitch

Disability Bitch

Every Thursday, DB tackles topics with the subtlety of a sledgehammer.

Motley Zoo

A close-up view of an Andre Jordan doodle

Welcome to doodler Andre Jordan's wonderful world of disabled animals.

Top Ten

A colourful number 10

Not-so-serious disability-related countdowns. Send us yours too!

Get Social with Ouch!

  • Twitter
    Follow us and enjoy the popular tweets from the Ouch! team.
  • Facebook
    "Like" the Ouch! page and keep up with all the latest.
  • YouTube
    Connect with Ouch! to watch a whole host of entertaining videos.
  • Flickr
    Link up with Ouch! to see the photos from the Talk Show.

Live community panel

Mat and Liz
Listen to our regular razor sharp talk show online, or subscribe to it as a podcast. Spread the word: it's where disability and reality almost collide.

More from the BBC

BBC Sport

Disability Sport

All the latest news from the paralympics.

Peter White

In Touch

News and views for people who are blind or partially sighted.

BBC Radio 4

You & Yours

Weekdays 12.40pm. Radio 4's consumer affairs programme.

BBC navigation

BBC © 2014 The BBC is not responsible for the content of external sites. Read more.

This page is best viewed in an up-to-date web browser with style sheets (CSS) enabled. While you will be able to view the content of this page in your current browser, you will not be able to get the full visual experience. Please consider upgrading your browser software or enabling style sheets (CSS) if you are able to do so.