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A woman in Northampton
Anyone can catch HIV

Treated 'like a leper'

Jackie's mistake was to have sex with her boyfriend without a condom. Now she feels shunned and treated like dirt.


Help & Advice

  • The only way to prevent sexually transmitted infections, including HIV, is to use a condom or femidom
  • If you are aged under 25 years, you can get free condoms at The Lowdown, 3 Kingswell Street, Northampton. Telephone: 01604 634385. If you require Counselling Information & Advice on any issue, including HIV/AIDS, call the Lowdown's Helpline: 01604 622223
  • The Northamptonshire Lesbian, Gay & Bisexual Alliance organise social events and offer counselling and support. They also have free condoms, lube and safer sex information. Call 01604 628986, or drop in on them at Charles House, Derngate, Northampton
  • SNAP is a Northamptonshire-wide HIV/sexual health outreach project for men who have sex with men. Call 01604 628986

Hands up if you've ever had sex without a condom. Jackie's story should make you think twice.

This Northamptonshire woman has never taken drugs, she's not gay, but she caught HIV by having unprotected sex with her boyfriend. "It could happen to anybody" she says.

"Now I'm always tired," explains Jackie (not her real name). "I've got joint problems.  I take 18 tablets a day.  There are side effects from the combination therapy: my weight suffers because the fat only goes to one place in my body, so I've got very thin legs and arms.  You've really got to look after your diet because the tablets you're on have a lot of cholesterol in them so you're more at risk of having a heart attack."

Stigma

But what upsets Jackie more than anything is the way she is treated by ordinary people.

"It's the stigma that goes with HIV and AIDS. They think it's dirty. But ordinary heterosexuals - anybody - can get it."

Jackie is shocked at the way attitudes to her change when people discover she has HIV: "They treat me like a leper when they find out, unless they're educated enough to know, or they've read up the facts that you can't get it from kissing."

Whilst some friends are OK about it, others are "stand-offish":  "They talk about it behind your back. 'You'd better not got near her, you might catch something'".

Jackie has become wary about telling people: "You can't just tell anybody.  You have to really trust them first.  But that's no guarantee because as soon as they hear they don't know how to handle it and they might just spread it around, and before you know it, it's common gossip.  Only because they don't understand the facts."

Relationships

"Wear a condom! But are you going to listen?"
Jackie

And new relationships are next to impossible.  Men "either just leave and don't want to see you again, or they just want you as a friend and they wouldn't have sexual relations with you because they think they might catch it.  But as long as you wear a condom and practice safe sex, there's no reason why you shouldn't have a healthy sexual relationship."

Jackie blames ignorance and prejudice for ruining her life. "You've got to tell your family or tell your partner.  But who do you tell?  You've got to be choosy because that partner might just drop you like a ton of bricks and go out and tell the whole world.

"You've got parents: they wouldn't want it known that you're their daughter.  That's how bad the stigma is."

Listen to an interview with Jackie by clicking on the link on the top right

last updated: 24/11/04
Have Your Say
Send us your comments on Jackie's experiences.
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The BBC reserves the right to edit comments submitted.

Irene Foster
i think that it is the high time that we stop being ignorant about Aids it is real and we should be aware that we are not safe unless we use protection.

bryony harper
i think that is horrible as at the end of the day you are still a person and it was not your fault you made one silly little mistake.we do not treat people like that i think people need to be educated more on it.

John Thomas
Being gay isn't a risk factor for contracting HIV. Unprotected sex on the other hand is.

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