Media playback is unsupported on your device

Huntington's family discuss how they cope with disease

31 July 2013 Last updated at 13:18 BST

Rugby player Josh Cook is 22 years old and has been diagnosed with the Huntington's gene, which means he will develop the disease when he reaches his 50s.

It affects the nervous system and will eventually leave him severely disabled.

His mum has the gene as well and will also develop the disease.

Josh talks to his mother about how they deal with day to day life with the disease hanging over them.

Follow @BBCNewsbeat on Twitter

Click here to Tweet this story from your account