Henrietta Lacks: Family win recognition for immortal cells

1940s photo made available by the family shows Henrietta Lacks Her story was made famous by 2010 best-seller The Immortal Life of Henrietta Lacks

The family of a US woman whose cells revolutionised medical research have been granted a say over how they are used, six decades after her death.

Henrietta Lacks, a poor black woman from Maryland, had cells removed from her by doctors when she was being treated for terminal cancer in 1951.

Researchers found they were the first human cells that could be grown indefinitely in a laboratory.

The historic breakthrough paved the way for countless medical treatments.

The story of how an African-American tobacco farmer unwittingly transformed biomedicine was made famous by a 2010 best-seller, The Immortal Life of Henrietta Lacks.

'Left in the dark'

She was 31 years old when she died of cervical cancer at Baltimore's Johns Hopkins Hospital. Her tumour cells were removed without her consent, as was typical at the time.

July 2013 photo shows a researcher placing HeLa cells in an incubator at at the US National Cancer Institute Lacks' extracted cells did something never seen before - they could be kept alive and grow

The genetic material later yielded key developments in such areas as vaccines, cancer and fertility treatment, spawning nearly 75,000 studies.

But while the "HeLa" genome laid the foundations for the multi-billion dollar biotech industry, Lacks' family have never shared in any of the riches generated by the so-called immortal cell line.

Her relatives only learned the cells had not only been extracted, but shipped to laboratories around the world, when a scientist contacted them in 1973 to request a blood sample.

The family will still not be paid any money under the agreement reached on Wednesday with the National Institutes of Health, the US government agency which oversees medical research.

But they will be granted some control over scientists' access to the cells' DNA code, and receive acknowledgement in the resulting studies.

The agreement came about after the relatives raised privacy concerns when German researchers published Lacks' DNA code in March.

Rebecca Skloot, author of the acclaimed book about Lacks, took part in the negotiations leading to the agreement and said the family had never asked for money.

Jeri Lacks Whye, a granddaughter who lives in Baltimore, said the relatives had always been "left in the dark" about research stemming from HeLa cells.

"We are excited to be part of the important HeLa science to come," she told the Associated Press news agency.

More on This Story

The BBC is not responsible for the content of external Internet sites

More US & Canada stories

RSS

Features

BBC © 2014 The BBC is not responsible for the content of external sites. Read more.

This page is best viewed in an up-to-date web browser with style sheets (CSS) enabled. While you will be able to view the content of this page in your current browser, you will not be able to get the full visual experience. Please consider upgrading your browser software or enabling style sheets (CSS) if you are able to do so.