Welsh government's 'opt out' organ donor consultation

 
Person signing organ donation card Currently people sign up to a register to donate organs

Related Stories

Families would have no legal right to stop dead relatives' organs being used for transplant if the person has not opted out in advance, under a proposed Welsh law.

However, Health Minister Lesley Griffiths said she could not see a situation where doctors took organs without the permission of families.

Ministers are asking for views on plans for a "soft opt-out".

If it goes ahead, Wales would be the UK's first country with the system.

Ms Griffiths said the lack of organs and tissues caused unnecessary deaths and suffering.

The law, planned to be in place by 2015, would require people to opt out of donating their organs when they die, rather than opting in by signing the register.

Doctors' leaders hope it will "change cultural expectations" and prompt more family discussions about donation.

Ms Griffiths said, in practice, she did not think the proposals would mean families losing the ability to refuse the organs of loved ones being donated.

Analysis by Arwyn Jones, BBC Wales health correspondent

At the moment the wishes of the deceased are given priority.

If someone is on the organ register their families cannot refuse for their organs to be donated.

But if the family object and a dead relative has not asked for organs to be donated, then organs will not be used.

Under the Welsh government's proposals people will be considered to have made an "expressed view" that they want their organs to be donated, unless they opt out.

There will not be a family veto against allowing organs to be used.

However, the health minister told BBC Wales she did not think that the proposals would mean families losing the ability to refuse the organs of loved ones being donated for transplant after they die.

She said, in practice, she "could not see a situation where clinicians take the organs of a donor without the permission of families".

First Minister Carwyn Jones will unveil the plans at the transplant unit at the University Hospital of Wales, Cardiff, on Tuesday morning.

The system is designed to increase the number of organ and tissue donors, if legislation is approved.

The Welsh government's white paper sets out proposals for how the system would work:

  • Only people aged 18 or over who both live and die in Wales would be included under the system
  • People must have lived in Wales for a sufficient period of time before being included in the opt-out system - the white paper invites views on how long that period should be
  • It proposes four options for how people's wishes on donation could be recorded - a register for Wales of persons who have not objected, and a register of persons who have objected; a register for Wales of only those persons who have not objected; a register for Wales of only those people who have objected; no registers but a record of objection given to and held by GPs.

Ms Griffiths said the Welsh government believed the legislation would go a long way to increasing the number of organs and tissues available.

"When people die, donation of their organs and tissues is often possible but currently does not happen - not because they did not wish to donate but because they never got round to joining the organ donor register," she said.

'Significant step'

"Repeated surveys show that the overwhelming majority of people in the UK and Wales believe in organ donation, but only one in three people in Wales have joined the organ donor register.

"Last year 67% of donors were not on the organ donor register. Therefore we believe creating an environment in which donation is the norm will enable more organs to be available."

The minister added: "Introducing a soft opt-out system will mean people are more likely to make decisions about donation during their lifetime and to have discussed their wishes with their family."

Transplant activity in Wales 2010/2011

  • There was a 60% increase in the number of deceased donors to 66 (in Welsh hospitals).
  • The number of donors after brain death increased by 45% to 39 and after circulatory death by 90% to 27.
  • There was an increase in the Welsh consent rate after brain death from 59% to 66% and after circulatory death from 28% to 62%.
  • The number of patients registered for a transplant fell slightly to 306 were waiting at the end of March 2011 and 122 had been temporarily suspended. 49 died waiting.
  • Nearly 200 patients received treatment.
  • Source: Kidney Wales Foundation

The British Heart Foundation called for the UK's other governments to follow Wales' lead, saying an opt-out system would prove to be the difference between life and death for many families.

"Wales has taken a substantial and significant step towards implementing a proven system that will see more heart patients receive the organs they need to stay alive," said Maura Gillespie, the foundation's policy and advocacy manager.

"An opt-out system would better reflect the wishes of the majority of people, and fill the void between good intention and action."

Roy J Thomas, chairman of Kidney Wales Foundation, described the government's plan as "a progressive move by Wales".

'Cultural expectations'

"The UK has one of the lowest donor rates in Europe," he said. "Wales will take the lead and show that we must presume to have conversations on this important issue."

Mr Thomas said presumed consent in itself was not the solution but rather a key facilitator within a well developed system and infrastructure for organ donation and transplantation.

"There has already been a significant increase in the number of donors in Wales to 66 in 2010/11 and the people of Wales understand this debate," he said.

Start Quote

One of the real problems I've got with presumed consent is that it undermines trust”

End Quote Glyn Davies MP Conservative, Montgomeryshire

Dr Tony Calland, chairman of the BMA's medical ethics committee, said it fully supported the move.

"The fact is that every year people die whilst waiting for organs, and evidence from other countries has shown that an opt-out system can address the shortage of organ donors and can save lives.

"We hope that a move to a soft opt-out system would change cultural expectations in society, and prompt more discussion within families about organ donation," he said.

But Glyn Davies, Conservative MP for Montgomeryshire, said he would be seeking time in Westminster to debate the issue.

Mr Davies said presumed consent would only deliver "a fraction more organs".

"One of the real problems I've got with presumed consent is that it undermines trust," he said.

"I don't mind moving towards a presumptive attitude because almost everybody is in favour of organ donation so it's reasonable to have a presumptive attitude.

"But if there's presumed consent, then there's a suspicion and I think that does affect trust."

Consultation on the proposals outlined in the white paper and closes on 31 January 2012.

The Welsh government said a bill would be introduced in 2012. Legislation could be in place by 2013 and a soft opt-out system could come into effect in 2015.

 

More on This Story

Related Stories

The BBC is not responsible for the content of external Internet sites

Comments

This entry is now closed for comments

Jump to comments pagination
 
  • rate this
    +11

    Comment number 656.

    I support the principal of organ donation but am opposed to presumed consent. I consider the scheme to be in breach of our human rights.
    How dare a government presume the right to use my organs without our permission.
    As far as provision for opting out as a safeguard for those that wish to do so, we are all too aware of the lack of ability of those in power to keep data safe or up to date.

  • rate this
    0

    Comment number 618.

    I owe my life to a liver transplant. I have two children and a partner I've lived with for over 20 years. I think anyone who's now inclined to opt out as a 'point of principle', should seek out a family like ours and ask them about the difference donation can make. I'm struggling to understand the doctor below who would allow his opposition to this bill to cost 4 or 5 people their lives.

  • rate this
    -5

    Comment number 609.

    Should have been done years ago when it was first proposed... A total travesty that it's taken this long to get to the consultation stage.

    The sooner it's introduced the better in my view!

  • rate this
    +7

    Comment number 591.

    I think the presumption of organ donation is a step too far. It is not hard to register as an organ donor currently. However I strongly believe the rules need to change so that family members are no longer asked for permission. The wishes of the person who died should be respected, not matter what the opinion of other family members is.

  • rate this
    -10

    Comment number 587.

    I have all my life tried to live a life of care and consideration for self and others, and at present I am a donour, but must admit am also considering removing this wish, due to the quantity of people not looking after there own health, with a false perception others will give.

 

Comments 5 of 29

 

More Wales politics stories

RSS

Features

BBC © 2014 The BBC is not responsible for the content of external sites. Read more.

This page is best viewed in an up-to-date web browser with style sheets (CSS) enabled. While you will be able to view the content of this page in your current browser, you will not be able to get the full visual experience. Please consider upgrading your browser software or enabling style sheets (CSS) if you are able to do so.