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Parents' fears over muscular dystrophy treatment cost

3 September 2013 Last updated at 10:13 BST

Parents of children with life-shortening conditions fear that new treatments will not be available because of the cost, it is claimed.

The Muscular Dystrophy Campaign says neither the NHS in Wales nor England has a dedicated pot of money to pay for new drugs for rare diseases.

Later, the findings of a parliamentary inquiry will be published at Westminster into the future provision of high-cost medicines for rare diseases.

Bethan Jenkins is the assembly's chair of the cross-party group on muscular dystrophy.

She spoke to BBC Radio Wales presenter Gareth Lewis.

Call for muscular disease centre

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