Organ donation: Heart transplant only option for boy
2 July 2013 Last updated at 08:05 BST
As politicians prepare to cast their vote on a controversial and fundamental change to the organ donation system in Wales, a mother has described the ordeal she faces as her five-year-old son waits for a heart transplant.
Emma Harrison, whose son Oliver's only option is for a heart transplant, says the issue is a matter of "life and death" for many.
She said it was a "nightmare you can't even imagine".
The Welsh government is hoping to adopt a system of presumed consent for donating organs after death.
The opt-out system, which could be introduced in 2015, would mean everyone is regarded as a willing donor when they die unless they state otherwise.
Assembly members are due to cast their vote on Tuesday on whether to pass the Human Transplantation Bill.