Mum from Strood helps charity after son's sickness

  • 17 August 2014
  • From the section Kent
Oakley Orange
Image caption Oakley Orange made a recovery after developing Stevens-Johnson Syndrome

The family of a boy who lost all of his skin, nails and hair because of a life-threatening allergic reaction to medication is joining with a charity to provide days out for sick children

Oakley Orange, from Strood, Kent, was seven years old when he developed Stevens-Johnson Syndrome in 2013.

He ended up in intensive care and was given a 65% chance of survival.

He recovered and now his mother, Lorraine, has joined forces with the Share a Star charity to raise funds.

Speaking of when her son became ill, Mrs Orange, said: "All you could see were the tubes in his mouth and his eye sockets, and even then they were bulging through the bandages, that is how swollen he was."

Now Oakley is better, his mother wants to help other sick children to enjoy days out.

Image caption Oakley Orange was treated in intensive care when he developed the condition in 2013

She said: "I wanted to be able to do something for children who do not have a specific charity to give them a day out to forget about hospital, to forget about medicine and treatment."

Share a Star was set up by Jessica Taylor, who was bedridden for nine years with a chronic form of ME.

The newly registered charity helps severely unwell children and teenagers under the age of 21.

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