Parents on fight for truth over son's death
26 June 2014 Last updated at 10:50 BST
A boy aged three died from a treatable condition because four health service organisations made mistakes.
The Parliamentary Health Service Ombudsman (PHSO) has said Sam Morrish might still be alive had he received appropriate care.
His parents Susannah and Scott spoke to the Today programme's Justin Webb about their battle to find out what happened.
They describe having to correct omissions and factual errors in official reports.
Broadcast on BBC Radio 4's Today programme on Thursday 26 June.