Patient Tom Coppins' tough questions at dementia summit
12 December 2013 Last updated at 07:26 GMT
On Wednesday leaders from the G8 nations committed to finding a cure or treatment for dementia by 2025.
Tom Coppin, who was diagnosed with dementia at just 57, went to the summit to meet some of those responsible for deciding the funding and future of research and treatment.
Graham Satchell reports.