We are not adding any new comments to this page but you can still read some of the comments previously submitted by readers.
a victim of the Polio epidemic of 1956, I suffer Post-Polio big
include muscle pain, joint pain, 4 inch loss of height, ulcers,
septosymia, amputation, weakness, severe fatigue and sleep problems. Life
is a continuous fight to keep mobile. If
my problems make GP's more aware of victims suffering, I will be
J. M. Beedel, Felixstowe
report about polio was very interesting. I had
polio 56 years ago (in Switzerland) when I was 4 years old. My
right arm was badly affected but thanks to physio got better within
a few years. Latley,
I noted that I am having more difficulties lifting this arm.
A Durrani, Colchester
to my GP with PPS & he said he'd never heard of it. I gave
him printed matter from the internet about it. Next
visit he said he had not had time to read it & therefore I do not
feel I am getting the correct treatment. My
symptoms are mild but I hoped by reacting quickly to beat it.
had Polio in 1957/8 aged 2/3. I started
having problems in 1998 and was forced to retire on ill health in
1999 as a result of Post Polio syndrome.
think I may be one of those who are possibly suffering post polio
the past year I have been seeing several specialists who can find
no cause for the symptoms I am currently having: gastric problems,
tiredness and leg pains.
was 5 when I had Infantile Paralysis (as it was then called), but
only a mild attack. I was
treated at home for months with my GP visiting at all hours of the
day and night. I remember
being upset on hospital visits because I wanted calipers and couldn't
now nearly 60. I will make an appointment to see my GP tomorrow.
sufferer.Ill in 1949. Paralysed all over except lungs. Recovered
well, but now going backwards.
of post-polio whilst in USA 1989, denied by consultants here. GP
supportive, said needed regular physio.
washed hands on me at Addenbrookes (Cambridge) Hospital saying I
was chronic not acute. This
happened three times, so have had to pay for private treatment,
fortnightly, since 1991.
1994 GP suggested Testosterone (Male HRT) to stop further muscle
wastage and draw line in sand. It works. Although have full length
splint on left leg and half one on right, am able to work as journalist,
and fly Cessna aircraft.
keen to help others where possible, so have contacted Polio Fellowship
Levy, Harleston, Norfolk
was so pleased to see a programme about PPS. It is important to
raise awareness, not only to inform the general public, but also,
supprisingly, to GPs and health care workers.
acute parralitic polio in 1955, before I was even a year old and
my life followed the course that your programme highlighted. We
tend to grit our teeth and get on with it.
nothing of PPS, and when my body began misbehaving and I went to
my GP, I was faced with blank looks and shrugging shoulders.
I hadn't got in touch with the British Polio Federation I may still
be suffering in ignorance to this day.
through persistence and stubourness, I was reffered to the Lane
Fox Unit at St Thomas's hospital where I was fortunate enough to
be placed on an experimental programme for rehabilitation.
learnt a lot, but sadly the funds have all dried up. I would be
interested in being kept informed of any feedback from your item,
as well as offering to help in any way that I can. Keep up the good
Taylor, Milton Keynes
Polio in 1952 when I was 11 years old. My symptoms, which I vividly
remember, were pains in my legs together with a fever. The doctor
was summoned and was instantly suspicious that I might have Polio.
sent by ambulance to the West Norwich Isolation Hospital where a
analysis of my spinal fluid confirmed the doctor's diagnosis.
in hospital for four months and I remember my Mother being told
"Oh, he'll never walk again." as the polio had affected my legs.
for me a freshly trained physiotherapist had just been taken on
and, with a considerable amount of perserverance from her and me,
I did walk again and without the need for sticks or callipers.
In mid-life the polio did not affect me much and I even went to
(and enjoyed) low-impact aerobics classes in my late 40s. But having
reached the age of 50.... I started to have difficulty climbing
the stairs and would fall over from time to time for no apparent
my remaining two years at work were just 15 minutes away by car
and, although my knees gave way from time to time.
the mid 90s, I'm not exactly sure when, I came across a person who
was collecting for a polio charity who mentioned PPS.
investigated PPS further via the internet and spoke to my GP about
it. He referred me to a specialist who subsequently carried out
some electrical tests that confirmed that I had had polio. And that
I contracted another illness that required some interesting metalwork
in one of my femurs. That didn't exactly help my mobility!
I do get about at home and can climb the stairs despite my weak
quad muscles, thanks to some extra handrails.
also shop in the local supermarket aided by a one crutch and one
trolley. With a pair of crutches I can walk a reasonable distance,
a mile or so, but I get tired and have to sit down from time to
remain difficult especially coming down them. I have to be very
careful and concentrate lest a knee gives way.
the topic of stairs and steps, I find the general lack of hand rails
a physio on a regular basis who advises me on what exercises to
do and have found that swimming is good for the heart and takes
the weight off the legs. I know about it if I do too much!