BBC - Health - Conditions - Arthritis useful contacts

8 January 2010
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Specialist groups

Ehlers-Danlos Support Group

Provides medical research information, available support groups and advice for people with Ehlers-Danlos syndrome.
Tel: 01252 690940
Website: www.ehlers-danlos.org

Fibromyalgia Association UK

Support, advice and information for people with fibromyalgia, and health professionals.
Helpline: 0845 345 2322
Email: fmauk@hotmail.com
Website: www.fibromyalgia-associationuk.org

Hypermobility Syndrome Association

Support, information and resources on Hypermobility Syndrome.
Tel: 0845 345 4465
Website: www.hypermobility.org

Lupus UK

Provides information about diagnosis and available treatments for people living with Lupus.
Tel: 01708 731251
Email: headoffice@lupusuk.org.uk
Website: www.lupusuk.org.uk

Marfan Association UK

Offers support, information and research on Marfan Syndrome, a variable connective tissue disorder.
Email: support@marfan.org.uk
Website: marfan.org.uk

National Ankylosing Spondylitis Society

Provides support, advice and information for the condition Ankylosing Spondylitis.
Tel: 020 8948 9117
Email: nass@nass.co.uk
Website: www.nass.co.uk

National Association for the Relief of Paget's Disease

Support and information on available treatments for people with Paget's disease, and health professionals.
Tel: 0161 799 4646
Email: director@paget.org.uk
Website: www.paget.org.uk

National Osteoporosis Society

Information, research and details of support groups for people with osteoporosis, and health professionals.
Helpline: 0845 450 0230
Email: info@nos.org.uk
Website: www.nos.org.uk

Psoriasis & Psoriatic Arthritis Alliance

Provides information, publications and training on psoriasis and psoriatic arthritis.
Tel: 0870 770 3212
Email: info@papaa.org
Website: www.papaa.org

Raynaud's and Scleroderma Association

Provides information, publications and research on Reynauds and scleroderma fo people with the condition, and health professionals.
Tel: 01270 872776
Email: info@raynauds.org.uk
Website: www.raynauds.org.uk

Scleroderma Society

Provides information, advice, factsheets, publications and fundraising information on scleroderma.
Tel: 0800 311 2756
Email: info@sclerodermasociety.co.uk
Website: www.sclerodermasociety.co.uk

Scoliosis Association (UK)

Offers information on scoliosis and membership to the association.
Helpline: 020 8964 1166
Email: sauk@sauk.org.uk
Website: www.sauk.org.uk

SILA - The Sarcoidosis Charity

Information, advice, treatments and support groups for people with sarcoidosis.
Tel: 020 7237 5912
Email: info@sila.org.uk
Website: www.sila.org.uk

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