Advertisement

Terry Pratchett: Living with Alzheimer's

Last shown: 18th & 25th May, BBC One (Sign Zone)

Originally shown: 4th & 11th February, BBC Two

Determined to prevent it if he possibly can, Terry Pratchett took a personal journey through the science and the reality of what it's like to be diagnosed with Alzheimer's.

This two part documentary followed Terry's race to find a cure as he endeavoured to find ways of slowing, mitigating or even reversing its course.

BBC Headroom has a dedicated number, 0800 0933 193, for anyone who is affected (directly or indirectly) by Alzheimer's disease. The number is free to call from a BT landline. Calls from other operators and mobile phone lines may incur a cost.

Watch some personal stories of living with Alzheimer's below, and on Video Nation. For more advice, download our Understanding Alzheimer's factsheet (736 Kb - Adobe Acrobat is required to download PDF files).

In order to see this content you need to have both Javascript enabled and Flash installed. Visit BBC Webwise for full instructions

Patrick's Story

Patrick and his wife talk about how their lives have changed since Patrick was diagnosed with Alzheimer's.

breakdown
Heather's Story
Terry Pratchett talks to NICE
Ruby looks at Alzheimer's

Since May 2006, three Alzheimer's drugs which temporarily improve or stabilise conditions, have not been made available to NHS patients in the early stages of the disease.

The government watchdog NICE (National Institute for Health and Clinical Excellence) believed that although the drugs were clinically proven, they were not cost-effective for the tens of thousands of people in the early stages of Alzheimer's.

However in May 2008, the Court of Appeal said that NICE should allow public access to the health economic model that it used to make its decision.

This will not change the situaiton for NHS patients in the short term, but it could mean further challenges to the NICE position. The Alzheimer's Society has worked with experts to scrutinise the model and has made confidential submissions to NICE on its calculations. It is awaiting NICE's response.

In the interview above, Terry Pratchett speaks to Professor Sir Michael Rawlins, head of NICE, about the situation.

Also on Radio and Television

The Alzheimer's guide

This guide gives an introduction to Alzheimer's disease and information on reducing your risk of developing dementia.

Elsewhere on the BBC

External links

Video Nation

See more personal stories about coping with Alzheimer's at Video Nation

Explore the Mood Spa

Check into Mood Spa and register for your free online life coach

All content within BBC Health is provided for general information only, and should not be treated as a substitute for the medical advice of your own doctor or any other health care professional. The BBC is not responsible or liable for any diagnosis made by a user based on the content of the BBC Health website. The BBC is not liable for the contents of any external internet sites listed, nor does it endorse any commercial product or service mentioned or advised on any of the sites. See our Links Policy for more information. Always consult your own GP if you're in any way concerned about your health.

Explore the BBC

This page is best viewed in an up-to-date web browser with style sheets (CSS) enabled. While you will be able to view the content of this page in your current browser, you will not be able to get the full visual experience. Please consider upgrading your browser software or enabling style sheets (CSS) if you are able to do so.