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Chronic Fatigue Syndrome
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Rosie got home yesterday after 3 and a half weeks in hospital
mystiThis is a reply to this message.
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Yay!!!
I'm so pleased! Pass on my pleased-ness to her, if you wouldn't mind mysti
Hope you're all alright...and samegirldifferentattitude (jennie isn't it? I'm sorry if thats totally wrong!) look after yourself, you can get back to sorting school work out when your better, health is more important.
A levels are tiring me out so how are you guys coping with your school work? I know if I'm knackered it must be looooooooooads harder for you...are you managing?
Take care guys...xxxThis is a reply to this message.
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yay that's really good news! hope she's doing ok!
are you there rosie??
and I'm doing a little better at the mo thanks as it's half term, but quite behind with my A level work... :-s
I just have to go to Uni next year, and Im worried I'm not going to get the grades coz of being ill...
hope everyone else is doing well, and the pom-pom twirling really helps hehe ^^
Jenny
xXxThis is a reply to this message.
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I've let Rosie know that both of you are pleased to hear that she's home. Thanks
I'll see if I can get her to pop back to leave a message for you, but she's not been out of hospital long so is still adjusting to life back at home.
Glad you're doing a little better Jenny. Sorry to hear that you're struggling with your A Level work though
Have you spoken to your teachers? Mine were really understanding and helpful when I developed ME.
Sorry to hear you're struggling with your A Levels too Bex, you are expected to do a lot of work in sixth form and I can understand anyone, even those who don't have health problems, finding it difficult. I really struggled at sixth form, but like I said above, speaking to my teachers really helped. That might be worth a try for you too as I'm sure they'll have helped other pupils as you wont be alone in finding it so tiring Luckily I finished sixth form in the summer, so that's one less thing for me to worry about at the moment 
Take care,
mystiThis is a reply to this message.
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Rosie had to return to hospital for a week and a half, but is home again now and will hopefully remain at home for longer this time. Before she returned to hospital I let her know that you were thinking of her and she said she'd try to pop back on here to update you all when she could.
mystiThis is a reply to this message.
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Hello!
Sorry I haven’t been in here for absolutely ages. Like Mysti has said (thankyouuu!), I’ve been in hospital for 5 weeks in total. My weight got too dangerously low to be an outpatient, so had to be admitted on September 28th. I was in hospital and tube fed for 3 & a half weeks. It was expected that having better nutrition and having stretched my stomach a little, I wouldn’t find eating normal food made me so sick. Unfortunately that wasn’t the case and eating normal food once again made me very poorly, so after about 10 days at home, I had to be readmitted. I was in for just a week & a half this time being tube fed as whilst I was there I was taught how to do the feeds myself, so was discharged on feeds. My stomach can’t tolerate more than a tiny bit of normal food, and even that makes me a little poorly. After 2-3 months of tube feeding, we’ll try gradually reintroducing proper food back into my diet once I’m back up at a normal weight. Hopefully after that amount of time, my stomach might be functioning a little better.
Thankyou for your kind messages Bex & Jenny and thankyou yet again for updating on here for me, Mysti. We know each other via a support group for ME now, so chat very regularly away from here, like Mysti said before.
How are you all doing? I hope you’re keeping as well as possible and A level work is going well – I hear A2s are really hard! I’m not doing anything education-wise this year, it’s all been put on hold.
Take care!
Rosie xxThis is a reply to this message.
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Glad to hear you're back out of hospital Rosie, and thanks mysti for keeping us in the know.
A2s are hard at the moment, I'm trying to deal with some other stuff going on. I'm getting treatment and that to help me out but its just a bit of a pain trying to juggle it haha!
But I shall not complain, I know you guys have it so tough and I hope you're managing. Keep happy guys, sorry I haven't posted in a while. Let us know how things progress
*pom pom twirl* xxxThis is a reply to this message.
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