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Listed below are comments made by Hannahlyme between Thursday, 19th March 2009 and Thursday, 19th March 2009.

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Lyme disease - useful information 11:46pm on 19 Mar 2009 The treatment of lyme disease can involve a lot more than antibiotics. There are many supplements which can help also diet and exercise is important.

The first treatment I received was to build up my immune system. Like many of the people who have already commented I suffered from a range of symptoms.

It is important that doctors learn to diagnose lyme symptoms because testing alone is insufficient in arriving at a correct diagnosis.

The suffering that many people endure is dreadful and people are having to resort to paying for private investigation and treatment. Of course, everyone cannot afford to go down this route.

Also it is difficult enough experiencing the devasting symptoms of lyme without being confronted by disbelief on the part of medication practitioners.

Well done to the One Show for raising this topic, however, the programme only raised the tip of this huge iceberg.

I hope that there will be a follow up.
Lyme disease - useful information 7:57pm on 19 Mar 2009 I became ill in June 2006 and was diagnosed within the NHS as having a psychotic illness. I went to see a homeopath and after twenty minutes discussion he concluded that I had Lyme Disease.

My GP had lyme testing carried out and these were negative. There is in fact a significant problem with lyme testing.

However, my GP asked for a referral to an Infectious Disease Specialist - this was refused. Without seeing me or speaking to me he recommended anti-psychotic drugs.

Returned to the homeopath who said that I needed to find a Lyme Specialist, which I did. However, in England rather than Scotland,where I live.

I was too unwell to make the trip to see him initially, however, blood tests were carried out and I was diagnosed has having borrelia bacteria in my blood.

It has taken a long time to regain my health and I am still on long term antibiotic treatment. I had to leave my work and leave my home and I still pay for all my medication as my diagnosis has never been accepted by NHS.

Many people are in similar circumstances because there is insufficient knowledge about lyme and over dependence on lyme testing.

I believe that the numbers of people suffering from this illness are much more widespread than Dr Jarvis indicated. Due to misdiagnosis and underdiagnosis.

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