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bvfrenchknitter

Listed below are comments made by bvfrenchknitter between Wednesday, 18th June 2008 and Wednesday, 8th October 2008.

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Toilets, farts, hair and what 'must be done' 07:22am on 08 Oct 2008 This is a very well-written unblinking look at life with a disability. I'm sure some will find it uncomfortable to read being disinclined to accept themselves as fleshy beings, even when healthy. I think people are so scared that disability could, and will, happen to them that they prefer to ignore it, to pretend that it will never happen to them. But it will happen to everyone. Old age or disability both steal away the bodies we have when young.

I remember how angry I felt when I realized that intractable pain was going to be a part of my life. But I endure and go forward. It is really the only choice I have.

Handicapped toilets - no special comments on them.

Hair loss - yes, and I hate it.
PWD's: SHUT UP! You're not inspirational enough! 03:07am on 18 Jun 2008 This is very well said.

People who are not dealing with pain or illness are scared and threatened by the thought that it could happen to them. Facing ones own mortality or pain is difficult and scary. It is so much easier to minimize our struggles and turn everything into a pretty story, easier that is for the non-afflicted. It is miserable for those who are dealing with pain, illness and death to be reduced to a courageous caricature.

Sometimes I feel couragous, sometimes annoyed and sometimes furious. The problem is most people most people don't want to hear it.

I've found online communities of others dealing with similar maladies most helpful for support and venting. I'm very glad they exist.

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