Jono Lancaster: So What if My Baby is Born Like Me?
Jono Lancaster and his girlfriend Laura
I was so nervous about the first documentary coming out. It was such an emotional time in my life but the BBC and the guys from the production company did a brilliant job with it, and the reaction from the world has been overwhelming. People have shared their stories with me, told me secrets and wanted to say hello. It's been brilliant and I can't thank you all enough.
Yeah, there has been some negative stuff - unfortunately that's life. There's been people pretending to be family, making jokes about me on websites, even people messaging me on Facebook saying nasty stuff, even questioning why Laura is with me - but this just makes me more determined to continue what I'm doing.
A quick catch up: me and Laura are still going strong, she's getting better around the house, ha ha!
Oh and I am getting a little better at those school talks - I haven't dropped my hearing aid since the first one. I've loved doing these - talking to the kids about my experiences of life, letting them ask questions. I love it and I've even done a few colleges too.
BBC Three asked if I was interested in doing So What if My Baby is Born Like Me? as it was something close to my heart. Something I was about to face and try and get my head around. And with the relationship I had with the guys at the production company, I jumped at the chance.
Again it's been emotional, but a journey that's been so very rewarding I've learnt lots. I'll never forget it and it's helped me loads. I think the most useful thing I've learnt is that what's right for one may not right for another. I feel so honoured to have met so many cool people - and the fact that they've shared bits of their lives with me means so much to me.
Jono Lancaster with Ashley, aged 10, who also has Treacher Collins syndrome, which affects the way their facial bones developed
Please add your comment to this blog if you want to share or ask me anything.
You can watch Jono in So What If My Baby is Born Like Me? tomorrow night at 9pm.
So What if My Baby is Born Like Me? is part of the Bringing Up Britain season.
- Visit the So What if My Baby is Born Like Me? website
- Find out what inspired Jono to take part in Love Me, Love My Face
- Jono Talks to BBC News about the agonising decision of whether to have a baby
- BBC Health: Treacher Collins Syndrome